Clinical Weakness

Status
Not open for further replies.

Joe Samuels

Member
Joined
May 11, 2021
Messages
13
Reason
Learn about ALS
Diagnosis
00/0000
Country
US
State
CA
Oh, that! Yes I do remember, but the EMG that I was referring to that I posted only was done on my left arm. I will ask my neuro the questions about that.

Also, I have a few questions about bulbar. I've tried to do as much research as I can on my part, but I still do have some questions if someone here would be willing to answer

- I've read that clean limb emg doesn't rule out bulbar ALS. Is this true?
- I have a stiff neck, tight throat, and twitching in neck, throat, and sometimes chin/jaw and around lips and cheek. My head also feels heavy to hold up and so does my neck.
- I also get jaw jerks where my jaw jerks off to the side causing it to go into my neck sometimes and causing my mouth to jerk off to the side.
- My tongue feels like I'm about to swallow it because it feels way too big for my mouth therefore I have bitten it in the back and now the back of my tongue near my throat is slightly sore.
- Sometimes I have excess saliva, and I've been tripping over my words and it feels like my mouth can't work fast enough to pronounce some words therefore it comes out all slurred.
 

ShiftKicker

Moderator
Joined
Mar 16, 2015
Messages
4,086
Reason
DX UMND/PLS
Diagnosis
06/2015
Country
CA
State
BC
City
Vancouver
Hi Joe-

Your last thread was closed because you were struggling to let things go even after being cleared by a neuro and with a clean EMG. It's pretty clear this second thread is not reassuring you, despite repeated attempts by he members here. You are repeating yourself now- you don't believe the specialist, nor the results of your EMG, so strangers on the internet clearly won't do the trick either. It is time to take your questions to your neuro and ask them in a situation where you can be examined and have the neuro address them as you go.

I am closing this thread. Please understand this forum is limited in what it can do once a few basic questions are answered. I recommend you go back to the "Read Before" thread and read the section titled "Finally". Please take care- and I hope you are able to really believe your doctor moving forward.
 
Status
Not open for further replies.
Top