Danijela
Senior member
- Joined
- Dec 3, 2008
- Messages
- 667
- Reason
- PALS
- Diagnosis
- 11/2008
- Country
- UK
- State
- UK
- City
- Bolton
Laurence's FVC sadly continues to decline. August 95%, November 80, yesterday 62. He has now been referred to a respiratory clinic for an assessment and bi-pap. His neuro said he is a good candidate for bi-pap as he has no bulbar issues.
They checked his 02 and cO2 levels, both are borderline. 02 was 94, and he could not remember co2 but is was slightly out.
He keeps losing weight, another 10 lb in the past 3 months. Neuro seems to think that loss of appetite is related to respiratory issues (L feels full after a few mouthfulls). Anyone else heard this one?
If this pattern of decline continues his FVC will be 40% at the next clinic visit. Peg has not been mentioned. Perhaps we should ask as I know they are problems with peg insertion and low fvc? Is it worth having a peg even though he may not use it - is it easy to keep clean/look after if not in use?
Thanks, Dani
They checked his 02 and cO2 levels, both are borderline. 02 was 94, and he could not remember co2 but is was slightly out.
He keeps losing weight, another 10 lb in the past 3 months. Neuro seems to think that loss of appetite is related to respiratory issues (L feels full after a few mouthfulls). Anyone else heard this one?
If this pattern of decline continues his FVC will be 40% at the next clinic visit. Peg has not been mentioned. Perhaps we should ask as I know they are problems with peg insertion and low fvc? Is it worth having a peg even though he may not use it - is it easy to keep clean/look after if not in use?
Thanks, Dani