tripete
Very helpful member
- Joined
- Dec 5, 2014
- Messages
- 1,002
- Reason
- PALS
- Diagnosis
- 12/2014
- Country
- US
- State
- PA
- City
- Lancaster
Bad News; My seated FVC down to 68% from 85% my prone down to 48% from 67%, right hand strength and left leg down approx 25%, clinic visits moved from 3 months to two months. Concern about my neck and chewing.
Good News; FVC now qualifies me for DPS (Diaphragm Pace making System), they did blood work for CO2 levels and SNIF X-Ray to test if diaphragm still works. Doc not sure if DPS will help but as I wont do vent he thinks that it is logical option. Should know tomorrow if test will qualify me.
Decision; If they do DPS they will probably want to insert a PEG (feeding tube) at the same time. I was against doing but talking with the doctor I am now not sure what to do.
Good News; FVC now qualifies me for DPS (Diaphragm Pace making System), they did blood work for CO2 levels and SNIF X-Ray to test if diaphragm still works. Doc not sure if DPS will help but as I wont do vent he thinks that it is logical option. Should know tomorrow if test will qualify me.
Decision; If they do DPS they will probably want to insert a PEG (feeding tube) at the same time. I was against doing but talking with the doctor I am now not sure what to do.