dall104610
New member
- Joined
- May 13, 2022
- Messages
- 3
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- UK
- City
- WIGAN
Hi guys,
Thank you for taking the time to read my post.
In mid February I started getting a strange sensation / altered feeling on the bottom of my right foot. Over a couple of weeks this became a very stiff right leg and then after around 3 weeks I started with widespread muscle twitching.
The stiffness in my upper leg reduced and the only stiffness I had was in my calf / ankle and foot area on my right side. I then noticed I couldn’t separate my toes on my right foot as I could on my left, but I felt like I should have been able too if that makes sense. My brain asking the movement to happen but it just wasn’t.
Long story slightly less long, I went to see a neurologist who thought I was fine but said we can do tests like head mri and EMG / NCS (right leg and both arms) for further reassurance if I wished (as I was paying).
So I booked both, MRI was clear and my neurologist told me in person that the EMG / NCS test test showed no sign of MND. He didn’t use the word “clean” or bring anything else up that’s all he said, he didn’t talk through anything in the report that could point to any type of alternative diagnosis or give me a copy of the report . I did have Covid about 4 weeks before my symptoms started and he said that could have something to do with it potentially but we can’t be sure.
His later letter stated “the neuro physiology tests did not show any evidence of motor neurone disease and there was no evidence of cramp fasciculation syndrome”.
This was about 1 month ago and since then I have had a noticeable reduction in size in my right calf muscle which still feels pretty stiff and irritated although it is not weak in my opinion. I am also getting sone stiffness in my right thumb and my twitching continues.
From what I have read an EMG would have picked up an issue if atrophy was present in a leg right?
Would you suggest I re visit my neurologist to talk through the report and or get his thoughts on the muscle reduction in my calf?
Any other suggestions would be welcome if you feel they may help.
Thank you again guys!
Thank you for taking the time to read my post.
In mid February I started getting a strange sensation / altered feeling on the bottom of my right foot. Over a couple of weeks this became a very stiff right leg and then after around 3 weeks I started with widespread muscle twitching.
The stiffness in my upper leg reduced and the only stiffness I had was in my calf / ankle and foot area on my right side. I then noticed I couldn’t separate my toes on my right foot as I could on my left, but I felt like I should have been able too if that makes sense. My brain asking the movement to happen but it just wasn’t.
Long story slightly less long, I went to see a neurologist who thought I was fine but said we can do tests like head mri and EMG / NCS (right leg and both arms) for further reassurance if I wished (as I was paying).
So I booked both, MRI was clear and my neurologist told me in person that the EMG / NCS test test showed no sign of MND. He didn’t use the word “clean” or bring anything else up that’s all he said, he didn’t talk through anything in the report that could point to any type of alternative diagnosis or give me a copy of the report . I did have Covid about 4 weeks before my symptoms started and he said that could have something to do with it potentially but we can’t be sure.
His later letter stated “the neuro physiology tests did not show any evidence of motor neurone disease and there was no evidence of cramp fasciculation syndrome”.
This was about 1 month ago and since then I have had a noticeable reduction in size in my right calf muscle which still feels pretty stiff and irritated although it is not weak in my opinion. I am also getting sone stiffness in my right thumb and my twitching continues.
From what I have read an EMG would have picked up an issue if atrophy was present in a leg right?
Would you suggest I re visit my neurologist to talk through the report and or get his thoughts on the muscle reduction in my calf?
Any other suggestions would be welcome if you feel they may help.
Thank you again guys!