Clarification

[PaulDavid]

Hello everyone. I’m here for a very common. Reason, I now understand, anxiety about symptoms. I have seen my gp who has refereed me for an EMG.

I started noticing weakness in both arms in January, things feel heavier than usual, soreness where the forearm muscles meet the elbow. This progressed to shoulder/knee weakness, I’m still able to lift weights - but again, they feel much more heavy than ever. I wasn’t very worried, but about three weeks ago I noticed fascillations in my feet, calf, hands - my toe or finger can even move -then everywhere; butt, knees, shoulders, thigh - I googled - and here I am. I had a very bad couple weeks of anxiety, which I have been able to get under control.

Is it possible to have such diffuse symptoms within six months? I feel like I need to ask for some further tests, blood work and vitamin levels are ok.

I appreciate this forum, and the generosity of the members. Have a good evening.

D

 

[lgelb]

Hi, D, widespread issues such as you describe within 6 mos. argue strongly against ALS. Really, the core of an ALS diagnosis other than the EMG you are scheduled for is a flat-out inability to lift your weights or stabilize your body while doing so. Fasciculations everywhere is really not an ALS thing, though I understand it is disturbing. An EMG will help rule out or suggest many different conditions, of which ALS is only one.

If there is no neurological damage or myopathy, that could point you back to a systemic illness, post-viral syndrome, poor sleep that you're unaware of, all kinds of things that your PCP would help you sort out, including further tests if needed. It may help while you are waiting for the EMG to keep a spreadsheet of when there is more/less weakness and what kinds of activities/problems precede it.

 

[PaulDavid]

Thank you, I appreciate the information

 

[PaulDavid]

As I wait for my neurologist/emg appointment - which is 4-6 months in Alberta, I just wanted to ask again: can onset be both arms, upper, at the same time? (Noticed this in January, things feel heavier now) Stiff shoulders, minor pain, as well as unsteady gait - at times, all accompanied by wide spread twitching and fatigue. I’m aware that the last two “symptoms” can be caused by the extreme anxiety I’ve been experiencing since going down this rabbit hole. I’m seeing a physio - chiro clinic soon for an assessment. Thank you!

 

[lgelb]

The flail arm variant begins in both upper arms, but with very pronounced functional impairment and atrophy, which you do not describe. And not with pain and the disseminated issues you mention. So I would continue to expect reassurance as regards ALS and would really keep in touch with your PCP meanwhile as mentioned.

Not sure what "physio - chiro" means in Canada, but would be cautious about any chiro manipulation, which can do more harm than good.

 

[ShiftKicker]

Hi-

It's not typically bilateral at onset, no.

You've been seeing a physiotherapist- have you experienced any gains in strength? Has the physio made any observations?

Have you been back to your doctor for further exam and to track any changes via clinical assessment?

Be careful with chiropractic treatments. It's not clear if they can be of assistance, and there can be some concerns with causing more harm.

Please also make sure to read here: Read Before Posting if you haven't already.

Best

 

[PaulDavid]

Thank you both - I really appreciate your educated advice. In Canada I’m referring to chiropractor & physiotherapy. I will steer clear of any chiropractic adjustments, I have not met with either yet - but have an appointment Monday.

 

[PaulDavid]

I had my EMG & exam today. All good, minor carpel tunnel in both wrists. They’ve scheduled me for a follow up in four months for peace of mind, they were extremely understanding. Thank you for your information and reassurance. All my best.