Merepage
Active member
- Joined
- Dec 26, 2012
- Messages
- 54
- Reason
- Learn about ALS
- Country
- US
- State
- PA
- City
- Center Valley
I have no diagnosis but slowly increasing weakness.. Last Emg in June clean...strength test last week with ALS dr fine, reflexes fine. I continue to twitch (9 mo) Headache everyday since Jan 2012 travels down left side of spine. MRI fine. All bloodwork fine including CPK. I asked my neurologist why I have heard it can take a year to diagnose ALS. She said it is because Drs don't want to tell the patient the bad news. She says emphatically that I don't have it but what else can this be? My arms are hard to lift but I can beat my friends arm wrestling. My 13 yr old hangs on my outstretched arms and I can hold them up. But I am more And more fatigued every day. Are there any stats on how long to diagnose ALS? Is 9 mo long enough to rule it out? How will this end? I'm tired.... Thanks for listening.