- Dec 22, 2017
I have an appointment at UCSF on Friday to change our the feeding tube since it is bleeding little at the stoma. I have not had a single day of a problem with the feeding. They set this at 1:00 and I was to see the neurologist at the ALS clinic right after. Got a call this morning from Interventional radiology. Since I can’t speak, my husband spoke to them. They want me there an hour early which is ok, but said that I won’t be through until 4:00! All the postings I have read say that this is a minor, quick thing! My tube is a dangle tube, G tube. It didn’t take that long when they initially put it in! Any thoughts??