- Joined
- May 9, 2016
- Messages
- 1,529
- Reason
- Lost a loved one
- Diagnosis
- 06/2016
- Country
- US
- State
- MN
- City
- Minneapolis
Brian was diagnosed in June of 2016, and we have been so blessed that he has had little progression.
Today though I was reminded that progression is real. I bought him a cane this summer for when the need arose. He mentioned that he would use it outdoors this winter (it will likely snow here within the next 4 weeks). I also think he looks a little wobbly at times lately. I told him he should use it indoors whenever needed and he agreed.
I am glad he tells me this stuff. I am SO grateful we are not in the situation with progression some here have been. I saw a post here from a PALS with a husband diagnosed in June also and he is "bedridden" now. I know another was diagnosed this Spring and has passed on.
I think I just saw that moment happen though where we really, really have to negotiate with this beast. Some lose quickly and dramatically from this thing, we are losing stuff slowly and quietly.
I am happy we got a super nice ride in today in the beautiful fall weather. He thanked me for it, which was unusual. He hugs me longer and tighter now. We are lucky for the huge love we share.
Today though I was reminded that progression is real. I bought him a cane this summer for when the need arose. He mentioned that he would use it outdoors this winter (it will likely snow here within the next 4 weeks). I also think he looks a little wobbly at times lately. I told him he should use it indoors whenever needed and he agreed.
I am glad he tells me this stuff. I am SO grateful we are not in the situation with progression some here have been. I saw a post here from a PALS with a husband diagnosed in June also and he is "bedridden" now. I know another was diagnosed this Spring and has passed on.
I think I just saw that moment happen though where we really, really have to negotiate with this beast. Some lose quickly and dramatically from this thing, we are losing stuff slowly and quietly.
I am happy we got a super nice ride in today in the beautiful fall weather. He thanked me for it, which was unusual. He hugs me longer and tighter now. We are lucky for the huge love we share.