Status
Not open for further replies.

MaxEidswick

Legendary member
Joined
Sep 1, 2013
Messages
5,567
Reason
PALS
Diagnosis
08/2013
Country
US
State
Texas
City
Pinehurst
> Please keep us posted on the potential VA in ! !

will do :)
 

cheerleader

Senior member
Joined
Jul 6, 2013
Messages
977
Reason
Lost a loved one
Diagnosis
08/2012
Country
US
State
Midwest
City
Small town
Max, looked up the drug. (Spelled Gilenya) and clinical trials started last year at Methodist neurological Institutute in Houston, as well as three other places. Have you called there to see if you can get in on this? The article sounded promising.
 

MaxEidswick

Legendary member
Joined
Sep 1, 2013
Messages
5,567
Reason
PALS
Diagnosis
08/2013
Country
US
State
Texas
City
Pinehurst
>ast year at Methodist neurological Institutute in Houston, as well as three other places. Have you called there to see if you can get in on this?

kicked me out, heart criterion -- ffda strikes again. I am working three other options :)

Congress are a bunch of self-simpering asses and the fda is a division of the kgb!
 

nebrhahe53

Very helpful member
Joined
Jun 13, 2014
Messages
1,016
Reason
PALS
Diagnosis
06/2014
Country
US
State
Tx
City
Austin
um wont als kill you too and in a much worse way than a heart attack? What a bunch of turds. Can you get the drug under the compassionate care criteria? Anybody know anyone that will give them an ms diagnosis?
Any chance someone not a veteran can also get the drug?
 

nebrhahe53

Very helpful member
Joined
Jun 13, 2014
Messages
1,016
Reason
PALS
Diagnosis
06/2014
Country
US
State
Tx
City
Austin
By the way, Methodist thinks riluzole is worthless-says if insurance wont pay for it dont even bother
 
Status
Not open for further replies.
Top