Status
Not open for further replies.

trying to stay positive

Distinguished member
Joined
Sep 17, 2007
Messages
300
Reason
CALS
Diagnosis
08/2007
Country
US
State
Illinois
City
Chicago area
Al, my prayers are with you. Hang in there. I love you too!
 

brooksea

Legendary member
Joined
Sep 27, 2006
Messages
5,171
Reason
Other
Country
HM
Sending prayers your way! Nasty business, this! Hope you recover soon!
 

GlenBrittle

Very helpful member
Joined
Oct 9, 2008
Messages
1,530
Reason
PALS
Diagnosis
10/2008
Country
CA
State
Ontario
City
Alexandria
Capt Al ,

Sending you Cranberry Juice wishes for you to get better soon.

Glen
 

BethU

Extremely helpful member
Joined
May 11, 2008
Messages
2,644
Reason
PALS
Diagnosis
05/2008
Country
US
State
California
City
Los Angeles
Capt. Al ... I'm praying for you, too. We can't get along without you.
 

MtPockets

Very helpful member
Joined
Jun 1, 2006
Messages
1,528
Reason
PALS
Diagnosis
05/2006
Country
US
State
Ms
City
Gulfport
Lab report positive

Finally got the culture back and I have a severe kidney/bladder infection. They have put me on an antibiotic called Sulfamethoxazole 800/Trimeth 160mg. I have never heard of this med before.
I think this was probably stirred up from the aid ripping out my catheter about 4 weeks ago. I was told that sometimes this can cause scar tissue to form in the urethra, from the bleeding, making it harder to insert catheters..
I have been running a fever and having bad pain in the kidneys, in my back it feels like 2 hands on each side of the spine, low back area.
I am doing better, thanks for the prayers. I believe prayer changes things and changes people. I am humbled by your concern for me. Thank you so much.
 

Blackpool

Distinguished member
Joined
Jun 19, 2009
Messages
270
Reason
PALS
Diagnosis
07/2009
Country
CA
State
Alberta
City
Edmonton
My prayers are with you and hope you are feeling better soon.
 

brooksea

Legendary member
Joined
Sep 27, 2006
Messages
5,171
Reason
Other
Country
HM
Capt. Al,

Hope the antibiotics work quickly for you! I don't know if it was mentioned in this thread or not, but have you tried those pills that are now OTC that "numb" the urethra? I think it is called AZO. That might help a little with some of the pain, if you are having the burning sensation. Can't take them all the time though, or they could mask symptoms of a new infection after this one clears.

Good luck!
 

abbas child

Very helpful member
Joined
Feb 29, 2008
Messages
2,159
Reason
PALS
Diagnosis
07/2007
Country
US
State
Maryland
City
Eastern Shore
Al, my heart just sank when I saw you again are having this trouble, and infection. You are daily in my prayers. I hope the antibiotic totally does the job this time. God bless you.
Ann
 

gramps

New member
Joined
Jan 14, 2007
Messages
7
Reason
PALS
Diagnosis
1/2007
Country
US
State
Texas
City
central
Hello,

I am a PALS, but also a Family Nurse Practitioner, and...I have to do intermittent self-catheterization. So I have a few observations:

1. An 18 or 20 French catheter is VERY small for an adult indwelling cath. I have used 20fr on 7 year old kids, NOT adults. I was taught to use a 12 or 14 fr. on adults Why? Because the holes in the cath are larger, and you can pass tissue (clots) much more easily. The fact that irrigation results in fluid around the cath seems to support this statement.
Going to a 12fr, with routine 4x daily irrigations w water would be my first move.
2. Having clots that plug up the holes in the cath leads to bladder infections, which means more clots...thus the vicious circle. You should have a urine culture & sensitivity for bacteria, then be treated with the appropriate antibiotic.
3. If your cath is getting plugged up, your urine is not passing freely, and it can back up to the ureters & kidneys & damage/infect them. This can be VERY serious. Dialysis and ALS do not equal a good quality of life!.
4. Once urine is flowing w a bigger cath, drink at least 2 quarts of water daily. You can't let the urine get concentrated.
5. Watch your blood pressure. Higher than normal BP could mean kidney problems.

I have used an indwelling cath for up to 45 days in a row, with no problems. Simply put, you are not getting adequate medical/nursing care.

If I am being too blunt, I apologize. As a PALS and a (male) RN & Nurse Practitioner, it angers me that they are allowing you to suffer when it it not necessary.

PM me if you want to discuss this opinion.

take care,
gramps
 

gramps

New member
Joined
Jan 14, 2007
Messages
7
Reason
PALS
Diagnosis
1/2007
Country
US
State
Texas
City
central
whoops, I forgot one suggestion:

If you continue to have the bladder spasms, ask for B & O suppositories. They are actually Belladonna & Opium, and will help a great deal w the spasms. The Belladonna helps stop the spasms, ans the opium settles the area doen a bit.

God bless you,
gramps
 

MtPockets

Very helpful member
Joined
Jun 1, 2006
Messages
1,528
Reason
PALS
Diagnosis
05/2006
Country
US
State
Ms
City
Gulfport
Thanks for the info I appreciate it. One question is a 14 smaller or larger than the 18? You say the 14 has larger hole opening, did I understand that right? Just learning all this stuff.
 
Status
Not open for further replies.
Top