lhagsjr
Distinguished member
- Joined
- Apr 25, 2007
- Messages
- 173
- Country
- US
- State
- PA
- City
- Philadelphia
OK Guys and Gals,
Here's the deal. I have ALS or another MND but my tests are clean so the docs wont diagnose me. However, I twitch like crazy, I have terrible atrophy, and my tongue is a mess. In addition all my joints click due to being unstable due to extreme muscle loss. I know I have it. Since last May '07 when an ALS expert dismissed me I havent really talked about my problems with my wife or family because I didnt want to burden them. They think im clean because the ALS docs says I am. The last round of tests(Oct. 2007) I went to the drs on my own and didnt even tell them. I know Im in big trouble. Would you:
1.) Continue to live the way I am. Dealing with on my own and pretty much leaving everyone else to live there lives normally.
2.) Breakdown to them?
Let me know what you think.
Thanks,
Lou
Here's the deal. I have ALS or another MND but my tests are clean so the docs wont diagnose me. However, I twitch like crazy, I have terrible atrophy, and my tongue is a mess. In addition all my joints click due to being unstable due to extreme muscle loss. I know I have it. Since last May '07 when an ALS expert dismissed me I havent really talked about my problems with my wife or family because I didnt want to burden them. They think im clean because the ALS docs says I am. The last round of tests(Oct. 2007) I went to the drs on my own and didnt even tell them. I know Im in big trouble. Would you:
1.) Continue to live the way I am. Dealing with on my own and pretty much leaving everyone else to live there lives normally.
2.) Breakdown to them?
Let me know what you think.
Thanks,
Lou