When faced with a disease that will likely end our lives within 3-5 years (or less, for those of us who may be a few years into it), I think thoughts that the average person rarely has become casual and common for us. I think about my inevitable death every day with the same calmness as I would have thought about what I was having for lunch several years ago. It’s just the reality of our situation. It’s good to make plans.
Regarding Coronavirus (and this could be a separate thread), those of us with respiratory weakness are in the high risk category. I also have asthma, so double whammy. I figure if I got infected, chances are I wouldn’t survive it. Though I’m going to try to avoid getting it, it would also be my ticket out of ALS and I wouldn’t want to be hospitalized. If my CALS got it, I’d be screwed. I have two hired caregivers. My contingency plan is to hire a third and give her a shift every week. If someone gets sick, she’s ready to fill in. If the epidemic gets really bad around here, I may have to hire a fourth. It’s analogous to stocking up on critical supplies.
Random morbid thoughts.