Caregiving ... What outsiders need to know

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Pandora

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Joined
Apr 30, 2011
Messages
130
Reason
Lost a loved one
Diagnosis
01/2011
Country
US
State
Texas
City
Crowley
1. We are not afraid to go to DEFCON 5 for our PAL.
2. We gave up on social skills long ago and don't care what you think.
3. We are already on edge .. careful not to push us over.
4. Where ever there is a PAL... there is a CAL.... WE ARE ALWAYS WATCHING!
5.Chances are we have not had a good night sleep in a while, and thats a good defense for insanity.
6. We devote every moment of our lives to our PAL and don't need any shit from people who don't "get it".
7. ALL of our tolerance and patience is for our PALs, not for someone who chooses to over look us and our special needs.
8. We have had a fight on our hands since we our diagnosis and by the time you piss us off we are seasoned battlers and could win a war.
9. We are sleep deprived and already defensive, don't give us any aggravation.
10. We know more about what works with our PAL, we probably already have taught our Doctors a thing or two, your suggestions are not needed.
11. If by some slim chance you choose to help us out, do what we ask, not what you think we might like.
12. Understand when we bite your head off, its stress and we have enough of it already, your feelings matter little when our PAL is in need.

Hope all care givers can smile and as AMEN at this, and to those lookie lou's . . . This is only my opinion, your actual experience with a PAL and CAL may very. :)
 

Barbie

Extremely helpful member
Joined
Dec 29, 2007
Messages
2,659
Reason
Lost a loved one
Diagnosis
01/2007
Country
US
State
FL
City
orlando
AMEN Pandora!
 

brooksea

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Sep 27, 2006
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HA! HA! HA! Wish I would have that list to print out so I could've passed it out to my husband's siblings! "Oh, you are offended because I bit your head off as he lies (sp) in hospice bed unconscious. OK. Call me in the morning or NOT."
 

Alyoop

Very helpful member
Joined
Jul 5, 2010
Messages
1,782
Reason
DX UMND/PLS
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NZ
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NZ
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NZ
Fantastic, that needs to be published. Send it to the Alsa, it is actually amazingly helpful. Thanks
 

themommy

Active member
Joined
May 3, 2012
Messages
82
Reason
CALS
Diagnosis
03/2012
Country
US
State
FL
City
Saint Petersburg
I LOVE LOVE LOVE THIS PANDORA! Yes indeedie - do! If people only had to fight our battles for a week or two - THIS DISEASE WOULD BE CURED! No one should have to go through this - EVER.
 

momap53

Very helpful member
Joined
Jul 2, 2011
Messages
1,640
Reason
PALS
Diagnosis
05/2011
Country
US
State
GA
City
EGA
I love it! I'm going to copy and send to my CALS!
 

themommy

Active member
Joined
May 3, 2012
Messages
82
Reason
CALS
Diagnosis
03/2012
Country
US
State
FL
City
Saint Petersburg
I posted this on my facebook page! Just LOVE IT!
 

minnesota

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Mar 7, 2010
Messages
189
Country
US
State
MN
City
Coon Rapids
Perfect...it should be an on-going thread and we could add things to it...you hit it spot on! Thanks for posting!
 

BeckyW

Distinguished member
Joined
Jun 20, 2011
Messages
156
Reason
PALS
Diagnosis
10/2009
Country
US
State
Vernont
City
Burlington
Just sent this to my hubby..my hero!
 

cervus

Senior member
Joined
Mar 18, 2011
Messages
923
Reason
Lost a loved one
Diagnosis
11/2010
Country
CA
State
AB
City
Leduc County
Love it! Thanks for posting this!
 

Plumeria84

Active member
Joined
Jul 22, 2011
Messages
42
Reason
CALS
Diagnosis
08/2009
Country
US
State
FL
City
Palm Coast
Lol, LOVE this ! My fav :
Chances are we have not had a good night sleep in a while, and thats a good defense for insanity.

That's my motto lately....
 

joni51

Senior member
Joined
Sep 8, 2010
Messages
985
Reason
Lost a loved one
Diagnosis
10/2010
Country
US
State
Al
City
Valley
Oh hell yea, this is so true..Love it!
 

st123

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Joined
Feb 2, 2012
Messages
298
Reason
Lost a loved one
Country
US
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Michigan
City
Mid
Perfect, unfortunately. Thank you, Pandora :)
 

st123

Distinguished member
Joined
Feb 2, 2012
Messages
298
Reason
Lost a loved one
Country
US
State
Michigan
City
Mid
Shared on FB. Thanks, again.
 

cairn175

Active member
Joined
May 1, 2012
Messages
39
Reason
PALS
Diagnosis
03/2012
Country
US
State
washington
City
chehalis
What a great post..and way too true
 
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