Elaine Ramos
New member
- Joined
- Feb 22, 2008
- Messages
- 6
- Reason
- CALS
- Diagnosis
- 03/2006
- Country
- US
- State
- New Mexico
- City
- Albuquerque
Hi All,
New to this forum. I feel overwhelmed with caregiving for husband diagnosed to 2 years ago with bulbar onset. He has FVC 30% and close to respiratory failure in the next few months. We've been married 16 yrs. He is 48 and I am 39. We have 2 girls, 11 and 14. He wants to get a vent so he can live longer. His arms/legs/trunk are still mobile but weakening daily. He uses his wheelchair regularly but can still walk. He has drop foot too and loses his balance more. He lost his voice Dec 2006 and uses a computer to talk. He still drives our girls to school in morning. Watches TV. Organizes his pills. Naps. I do the rest. Not mad, just overwhelmed b/c money is getting tighter and tighter and I have to work less and less so I can help him. I have bad dreams regulary that he is leaving me. He is never sick and cann talk in my dreams but he leaves me because he is mad at me for something or he meets someone else. Do other women/men who are caregivers have the same experience?
New to this forum. I feel overwhelmed with caregiving for husband diagnosed to 2 years ago with bulbar onset. He has FVC 30% and close to respiratory failure in the next few months. We've been married 16 yrs. He is 48 and I am 39. We have 2 girls, 11 and 14. He wants to get a vent so he can live longer. His arms/legs/trunk are still mobile but weakening daily. He uses his wheelchair regularly but can still walk. He has drop foot too and loses his balance more. He lost his voice Dec 2006 and uses a computer to talk. He still drives our girls to school in morning. Watches TV. Organizes his pills. Naps. I do the rest. Not mad, just overwhelmed b/c money is getting tighter and tighter and I have to work less and less so I can help him. I have bad dreams regulary that he is leaving me. He is never sick and cann talk in my dreams but he leaves me because he is mad at me for something or he meets someone else. Do other women/men who are caregivers have the same experience?