I have a similar problem, and have resorted to using a urinal for everything except that hoped-for once-a-day big job, for which my husband still transfers me to and from toilet with the help of a Vive transfer belt. The female urinal is not perfect, requires being able to unweight your bum a little and really get it jammed in there. I drive my chair right up to the wall with a grab bar on it, tip forward as much as I dare, and hope ive got it in place. I have a diaper on, opened up, so any errors in placement aren’t catastrophic. But it does get harder to accomplish and sometimes doesn’t seem safe. I was supposed to move into an assisted living by now, but they aren’t letting anyone move in now. I still can use my arms and hands fairly well, but dread what happens when they give up.
Clothing is a big factor too, but for me I just gave up on pants. I just wear a t shirt or tshirt dress and a diaper, makes it much easier for those urgent occasions.
We haven’t used any outside help yet, and I’m confused about how it’s paid for. I thought Medicare would pay for some, and the ALS Association has said they will pay for some too. I’ve even heard of people who have family members being compensated for caregiving. Can anyone straighten me out on how this works?