ALSGerman
New member
- Joined
- May 14, 2022
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- DE
Hey guys I have read up on BFS and other conditions but my symptoms have been getting worse and worse.
1.5 Month ago I couldn’t feel my left side anymore.
1 month ago, before twitching of limbs and calf muscle started I had a clean MRI, it was limb twitching at first so left side mostly, now its also the muscles but mostly left side.
Lumbal puncture came back negative.
3 Weeks ago couldn’t feel my legs in the train, I suddenly had problems breathing in and a pain with breathing in, I had to call an ambulance. After that incident the trouble with swallowing started, tightness generall and harder.
I have issues and its extremely hard for me to swing the golf club or hold something
2 Weeks ago I started not being able to feel my 3 fingers left and right side, this has gotten worse every day.
From an age perspective it shouldn’t be ALS but the problem is I have had a negative MRI and a negative lumbal puncture.
I can‘t sleep anymore because of the twitching, sometimes I wake up at night, my girlfriend has seen aggressive jerks when asleep.
I have to add that my funnybone nerve doesn‘t seem to function on left and right side anymore, It doesn‘t react.
1.5 Month ago I couldn’t feel my left side anymore.
1 month ago, before twitching of limbs and calf muscle started I had a clean MRI, it was limb twitching at first so left side mostly, now its also the muscles but mostly left side.
Lumbal puncture came back negative.
3 Weeks ago couldn’t feel my legs in the train, I suddenly had problems breathing in and a pain with breathing in, I had to call an ambulance. After that incident the trouble with swallowing started, tightness generall and harder.
I have issues and its extremely hard for me to swing the golf club or hold something
2 Weeks ago I started not being able to feel my 3 fingers left and right side, this has gotten worse every day.
From an age perspective it shouldn’t be ALS but the problem is I have had a negative MRI and a negative lumbal puncture.
I can‘t sleep anymore because of the twitching, sometimes I wake up at night, my girlfriend has seen aggressive jerks when asleep.
I have to add that my funnybone nerve doesn‘t seem to function on left and right side anymore, It doesn‘t react.