can weather tempature effect symptoms of ALS

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APL55

Active member
Joined
Jul 8, 2010
Messages
81
Reason
PALS
Diagnosis
03/2010
Country
US
State
Va
can weather tempature effect symptoms or make them worse?
 

joelc

Extremely helpful member
Joined
Jul 15, 2006
Messages
2,786
Reason
PALS
Diagnosis
09/2005
Country
CA
State
BC
Re: can weather tempature effect symptoms

Definitely. When I am cold I totally seize up.
 

Pat Paine

Distinguished member
Joined
Aug 20, 2010
Messages
186
Reason
PALS
Diagnosis
03/2010
Country
US
State
California
Re: can weather tempature effect symptoms

Cold makes me shake and tremble, it is harder for me to sleep when it is cold.
blessings, Pat
 

Beach Bum

Distinguished member
Joined
Oct 5, 2010
Messages
142
Diagnosis
08/2010
Country
US
State
SC
Re: can weather tempature effect symptoms

Cold makes me lose control of everything in my body,my jaw is the worst part.I used to ski the mountains of Vermont and New Hampshire in temps of like 0,not today.I always have a warm jacket and hat in sight.
Good Luck ------Ken
 

Noirvault

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Dec 4, 2010
Messages
17
Country
US
State
tx
Re: can weather tempature effect symptoms

I grew up in Ohio and hated cold as far back as i can remember, but one thing it has done for me is that my nerve endings or whatever it is doesn't seem to hurt as much in the cold. I hurt far more when it's around 70 degrees than when it's 35, but when my body gets cold it takes me forever to warm back up. Over the weekend I was aching everywhere when it was warm, but a cold front came in two days ago and the pain has eased up quite a bit. I still hate cold with a passion, but at least the pain has lowered so it's been a double edged deal for me. Maybe the cold has helped with inflammation, but there is no way I want to let my core temperature drop. When that happens then my joins ache everywhere and then I do tighten up like a spring. Half a dozen of one and six of the other. Take my pick, huh?
 

Marjorie R. Wilcox

Senior member
Joined
Nov 21, 2007
Messages
660
Diagnosis
10/2007
Country
US
State
New York
Re: can weather tempature effect symptoms

Rick doesn't feel the cold or the heat. It seems to be one of his symptoms that the nerves just don't tell him these things. He doesn't feel pain either. Almost lost his leg in an explosion, subsequently had 8 surgeries which saved the leg, but he never even used the prescriptions he was given for pain. The doctor's said that was not good, but I considered it a real blessing.
 

Al

Legendary member
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
Re: can weather tempature effect symptoms

A slight cool breeze just sucks the heat out of me. Once cold it takes forever to warm up.

AL.
 

Marjorie R. Wilcox

Senior member
Joined
Nov 21, 2007
Messages
660
Diagnosis
10/2007
Country
US
State
New York
Re: can weather tempature effect symptoms

That's a bummer everyone.
 
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