Can these symptoms be pointing to ALS

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Justin93

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Hey all. I just want to start out by saying I mean no disrespect coming here or diminishing the diagnosed individuals in this site. My heart truely goes out to you and your families. I am just here because I have been struggling the last couple of years with a progression of symptoms.

I will list my symptoms in list form:

-Started with Dizziness/uncoordination
-Vision issues began requiring me to need glasses and even then they can still go blurry some days
-Full body tremors began and they come and go with severity.
-numbness in the left side of my face that comes and goes
Shakey muscles when under even light load. My legs almost feel awkward and like noodles when trying to walk up and down stairs (down is worse) also being bent down will cause my legs to shake. My abdominals also shake violently under light loads.
-foggy brain/confusion comes and goes.
-muscle twitching in my legs along with powerful muscle jerks right before falling asleep.
-some days it feels like I have marbles in my moth like my tongue cannot make the shapes it needs or get out of the way when needed to make words.

The shaky muscles are everyday. That is something that has just progressed and never really has had improvements just worsening. (Especially when I try to be active or workout)

I have been to my doctor a bunch the last couple years trying to get this narrowed down. I have had an MRI and Cat Scan of my head and neck plus have saw a neurologist who was a very unfriendly man and just did a bunch of physical tests and said he didnt feel any reason to send me for more testing.

I live in Canada which believe it or not has awful healthcare. Just because it's free does not mean it is good. We have a lot of dismissive doctors here and it can take 1-2 years to even see a specialist and now with covid it is even longer.

I am trying my best to not let anxiety control me and adapt and live my life around these symptoms but thr more I get symptoms the more I feel something more sinister is at play and is hard to adapt to.

So I guess my question is did anyone have symptoms similar to mine before a diagnoses ?
 

lgelb

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I would ask for a sleep study. You can start off with videoing your own sleep for weird movement and/or breathing. There are also home kits so you do not have to go to a lab.

No reason to consider ALS that I can see.

Best,
Laurie
 

ShiftKicker

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Hi Justin- here's a handy guide to ALS symptoms and all sorts of information. Important - READ BEFORE POSTING! Answers to common concerns about possible symptoms

You will find, once you read it, that what you report does not fit the pattern for ALS. Sensory issues, dizziness, vision issues, etc, are not things that would make a neuro think "Hmm, ALS", in fact they point away.

With regards to your comments about the Canadian health care system, I wholeheartedly disagree. While you feel there is urgency, your neuro did not see it, which means you will have to find another reason for your issues. This can be frustrating, but hardly a reason to trash a medical system that has served many of us here very very well.
 

Justin93

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Thanks for the quick responses ! Meant to add my facial muscles twitch when smiling or frowning. Again based on what you are saying sounds like they too likely arent a sign.

As far as bashing the Canadian healthcare system sorry you took offence to that. I'm glad you have found great help from them. I have saw an extreme amount of flaws with it not with just my own experiences but ones with friends amd family members that have ended up passing because of lack of urgency! Again it likely has to do with which area you are from and what doctors you meet ! I'm sure there are good stories and bad stories from everywhere and I'm sorry to have bashed the whole healthcare system as a whole!
 
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