Borrie
New member
- Joined
- Feb 24, 2023
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- HU
Hi everyone,
Thank you for everyone who is taking the time to read this and help. I gave birth in november(emergeny c-section with spinal anesthesia. I started to have symptoms (numbness, body aches) a week after.
I was sent to the hospital for further testing, first they checked for MS, I had clean brain + neck MRI, normal nerve conduction study, normal blood work. I had hiperexcitability, brisk reflexes, spasticity, left ankle achilles clonus..so the neurologist ordered blood work for GAD antibody to check for stiff person syndrome(negative), however she suspected that hiperexcitability was only caused by anxiety.
But of course i googled hiperexcitibility, clonus and etc which all lead me to go down the ALS rabbit hole.
A few weeks later I started to have widespread twitches, so went back for a follow up, and had a normal exam(no descrepancies this time), so she did not think any further testing was necessary.
My symptoms at the moment:
I know my symptoms are mostly sensory and I have health anxiety and also OCD, but the symptoms are real, been suffering from them everyday for 3 months, I just need to understand my results. The doctor was brief, only saying no reason to think it is motorneuron disease. There are a lot of people here who are experienced in EMGs, this is why I turn to you for your insights as I don't know how does an ALS EMG look. Can I exclude ALS and let it go or is there any reason to keep looking into this?
Again thank you for taking the time to help.
(I am from Hungary, but I think the results can be understood, they are mainly in english anyway)
Thank you for your help in advance!
Thank you for everyone who is taking the time to read this and help. I gave birth in november(emergeny c-section with spinal anesthesia. I started to have symptoms (numbness, body aches) a week after.
I was sent to the hospital for further testing, first they checked for MS, I had clean brain + neck MRI, normal nerve conduction study, normal blood work. I had hiperexcitability, brisk reflexes, spasticity, left ankle achilles clonus..so the neurologist ordered blood work for GAD antibody to check for stiff person syndrome(negative), however she suspected that hiperexcitability was only caused by anxiety.
But of course i googled hiperexcitibility, clonus and etc which all lead me to go down the ALS rabbit hole.
A few weeks later I started to have widespread twitches, so went back for a follow up, and had a normal exam(no descrepancies this time), so she did not think any further testing was necessary.
My symptoms at the moment:
- widespread twitching
- pain in ankles - at the top of the ankle (not sure how thats called) it feels like my foot is about to tear off (the pain is mostly at night and when i am resting)
- pain in right thumb, also feels stiff and feels like it is harder to move
- occasional sharp pain in fingers, toes
I know my symptoms are mostly sensory and I have health anxiety and also OCD, but the symptoms are real, been suffering from them everyday for 3 months, I just need to understand my results. The doctor was brief, only saying no reason to think it is motorneuron disease. There are a lot of people here who are experienced in EMGs, this is why I turn to you for your insights as I don't know how does an ALS EMG look. Can I exclude ALS and let it go or is there any reason to keep looking into this?
Again thank you for taking the time to help.
(I am from Hungary, but I think the results can be understood, they are mainly in english anyway)
Thank you for your help in advance!