- Jan 5, 2008
- Learn about ALS
I was just wondering from others and what they have read if there is an autoimmune type of ALS or if it can be triggered by another disease. Thus far I am a medical mystery. I have had a postive anti nuclear antobody that comes and goes. It sounds odd but when all of this started my hands had puffed up huge. I then got sensory, numbness,burning etc. I have atrophy that is quite pronounced in hands and forearms, tongue,face,shoulders and feet and calves. Lately my hips are sore and I can tell my gait is off. I have hyper reflexes over whole body and clonus that some doctors find and then other times they don't find it. My skin is so hypersensitive it hurts to touch over whole body. I am starting to have a leaky bladder and bowel problems. I have had all of the run of the mill tests that have revealed nothing. Ncs, mri,bloodwork,spinal tap, evoked potential. When I first became ill and they tested my when I had the swollen hands my serum iron was high that was the only thing, and then the positive ana which is now negative. I have looked searched, everywhere and nothing seems to fit my symptoms. Has anyone heard of an autoimmune type of als? There is ms and rheumatoid arthritis in my family, but these have been ruled out. I am awaitng emg, but no one seems to be able to figure out what I have. I have been told I may just be one of those people who never gets a diagnosis. Oh yes and these spots in the eyes, floaters ,do these happen in als?