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Bama09

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I need some advice on symptoms.

Last week i experience tingling sensation in my left leg for awhile until the sensation went to other parts of my body. I started to twitch all over and I felt pain thought out my body. I had calf, thigh, arm, head, neck, shoulder, and chin pain. I had this pain for 5 days. I was jerking as well. When I was sleeping on Wednesday, it felt like my chest close, and I couldn't breathe at all and my body started to jerk all over. I feel better now, but I still feel a lil pins and needles pain my my calfs, thighs, left arm and right shoulder. I wanted to know are these symptoms related to ALS or something else. I read about ALS, but I have a hard time understanding the symptoms and most sites do not do a good job giving details about AlS.
 

Vincent

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Re: I need some advice on symptoms.

Pain-not ALS go see your doctor
Vincent
 

Atsugi

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Re: I need some advice on symptoms.

Pain-not ALS go see your doctor
Vincent

What he said.


BAMA09: Your symptoms have nothing to do with ALS, not even a little bit.
 

MaxEidswick

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Re: I need some advice on symptoms.

Hi -- ALS/MND is a scary disease to consider/fear. We empathize. This note is not to deter you from your investigations, but just so thoughts on how we can help each other ...


Here are some first considerations that may help:

#1 - Read the STICKIES at the top of this forum. Many questions are answered there. 99% of new questions are addressed.


#2 We are not doctors or diagnosticians, but people who are dying from or caring for people with ALS. Some of us have to type with one hand, one finger, via dictation, or even with our eyes, so reading/replying to the anxiety-ridden can be very tiring.


#3 if you think you have a motor neuron issue, see your Primary Care Provider and get a referral to a motor neuron qualified neuro, note: most are NOT ALS/MND (Motor Neuron Disease) experienced!


#4 an EMG, properly done, is the gold standard test for ALS. But also, an abnormal EMG can indicate HUNDREDS of other, non-fatal, diseases. So listen to your doctor.


#5 ALS does NOT present with pain, cramps, or fatigue. In ALS, you feel perfectly normal but your muscles simply won't work. Typically, the first sign of ALS is a foot or a hand that inexplicably just won't lift up. It doesn't hurt or feel weak, it just is limp. That is paralysis.


#6 ALS is about failing, not feeling, so forget the "feeling" symptoms


#7 If your main issue is twitching go to the bfs forum. If you have weird neuro symptoms try neurotalk. There are also forums for health anxiety.


#8 Your doctor is wise to look at other diseases. ALS is rare. In order for it to be ALS, it has to be nothing else.


#9 Many of us cough/gag/choke and/or can no longer speak. It is difficult to have anxious people constantly chasing this disease, when we can't escape it. There seems to be this cult of ALS wannabees/groupies. You don't want to fall into that bucket do you?


#10 Anxiety can be a real problem that can endanger your physical health. It is what leads many folks here to this forum -- it is a self-fueling fire. Try to avoid using google and/or this forum if you can -- if you cannot stay away and off this forum it should tell you something important!


Lastly, if you are still interested, go to alsa dot org or mda dot org ...


We sincerely hope you do not need to be here! But find out first. If you do need to be here let me say "Welcome, sorry you are here!"


-----
Max - Monday, August 18, 2014 12:03:01 PM
-----
onset 9/2010, diagnosed with ALS by Stanley Appel 8/29/2013
It Is What It Is ...

.
 

Bama09

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I was wonder can als affect fingers meaning you can't extend your middle finger up or you can move certain fingers around freely or fast? I dealt with pain numbness and twitching all over my body for weeks. It kinda hurts when I try to extend my middle finger on my left hand.
 

Atsugi

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You might have a problem with pinched nerves in the "carpal tunnel" of your wrist.

You don't have ALS.
 

skipper66

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It's not ALS. Maybe, something like carpal tunnel or even arthritis? We answered your question. Please take the rest of your questions now to a qualified Dr. Good luck to you.
 

AfraidButNotAlone

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May God Bless you and keep you close to Him.
 

Mediasmart

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go get an emg done on your affected arm. carpal tunnel and ulnar nerve are common. let me put it this way. i started with atrophy and loss of motion in my left hand. a hand doc did surgery on both and it was 100% successful. my left hand and arm went to 12% strength left to right. We moved to ALS is 3 months.

not saying that this is your case but if you have a pinched nerve that is causing your issues, then get it treated. 99,999/100,000 you will be fine. that 1/100.000 is what needs attention. so great the odds in your favor.
 

Bama09

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Thanks for e responses. How much it cost to get emg since Im a 24 year with no health care?
 

LaurieCALS

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We have no idea. Call the doctor's office.

Good luck
 

MaxEidswick

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contact the alsa/mda
 

Atsugi

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You might want to try crowdfunding for the $1000 you'll need to pay for your tests and interpretation.

Since you don't have ALS, I need to ask you not to take up our time here.
 
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