My mom is a PALS and officially diagnosed in June. Her speech is very slurry and is using a walker exclusively. Many of her small motor skills are impaired as well.
My tiny victory was her allowing me to begin cleaning her house once a week and maybe put some dinners in the freezer.
She's been married to her high school sweetheart for 1 year and I know she feels guilty that they are newlyweds and she "comes down with" ALS. His previous wife died from a long battle with cancer 2 years ago. I know she feels she's burdening him. Anyway, he is working full time and caring for the house/yard. I know it was hard for her, but knowing he won't have to clean the house will hopefully ease her mind a bit as far as their relationship goes. She doesn't need my help with anything involving the physical symptoms of ALS yet, but at least I can do this little thing for her. If her DH will let me, I'd like to get my DS to mow their grass. They just have a tiny patch of grass that probably won't take an hour from start to finish.
My tiny victory was her allowing me to begin cleaning her house once a week and maybe put some dinners in the freezer.
She's been married to her high school sweetheart for 1 year and I know she feels guilty that they are newlyweds and she "comes down with" ALS. His previous wife died from a long battle with cancer 2 years ago. I know she feels she's burdening him. Anyway, he is working full time and caring for the house/yard. I know it was hard for her, but knowing he won't have to clean the house will hopefully ease her mind a bit as far as their relationship goes. She doesn't need my help with anything involving the physical symptoms of ALS yet, but at least I can do this little thing for her. If her DH will let me, I'd like to get my DS to mow their grass. They just have a tiny patch of grass that probably won't take an hour from start to finish.