CALS Roll call

[Nuts]

Max, you may. I hope it serves as a cautionary tale...

 

[Gembead]

My BJ had his 3 month visit with his MND specialist and she was happy with his slow progress, he was fitted with some leather ankle supports to help with his dragging feet. He will probably have a lung function test next time we go up in 3 months, just before we go on our next cruise.his attitude is great and he is a pleasure to be around.
Love Gem

 

[smoochiegal]

Am I a day late? I have been so stinking busy that I have not been here for what seems like a long while...
Since I was here last.. lets see..
my 13 year old son broke his leg in the first 10 minutes of his first soccer game of the season... SO have 2 'patients' to look after. It's been crazy!
I killed a ladys cat right in front of her... (I could not do anything about it.. it ran right under my car) but I felt sick about it.
PALS mom is not visiting and obviously feeling guilty about it and causing huge drama! (yes, she lives 10 minutes away, and yes, it has been a month since she has come to see him)
My dog got banned from daycare as she had a papilloma virus (I cannot leave her here alone with PALS as he cannot get her on or off her lead if needed) So I have been stuck home more often.
PALS speech is getting harder and harder to understand.
He is getting weaker and some days are really hard, but since we have increased his pain meds he is feeling much happier. (any day that is a happy one is a good one.
Can't wait to have a few minutes to read your updates.. ( I have had to get up to respond to requests 4 times while trying to type this message.

Miss being here.
Hope you all have had an ok day!
Cheryl

 

[Barbie]

Today when I got my husband up from his nap, I leaned over and kissed him and told him I loved him. he responded "I don't blame you"

what a devil he can be!

 

[bigmark1954]

...............

 

[gooseberry]

Good that he still has a sense of humor Barbie!

 

[Nuts]

Cheryl, maybe we need a truncated version for folks who don't have time for the unabridged versions?

Barbie, he's hilarious!

Hi Mark!

Gem, I love that the travel plans continue!

 

[MaxEidswick]

>I leaned over and kissed him and told him I loved him. he responded "I don't blame you"

sent to sandy

 

[Dusty7]

May have to steal that one...

 

[gooseberry]

Doing okay here. Very frustrated with the va. Still not approved. Guy out for 7-8 days unexpectedly and hadn't done our final.review so everything sat. Then he calls to say he is missing things I sent and the contractor sent. We resend everything only to have them say our tile won't work. Picked out a new one that meets their list of requirements and will send once I get new paperwork from the contractor. In the meantime not much sleep. Really need a good night worth tonight.

 

[Atsugi]

Just checking in.

I'm almost ashamed to admit it to current CALS, but...

Life now--three and a half years since ALS--is great. My boy is living outside my house and going to college. He's nearly independent now. My daughter is reviewing apartments to live in when she goes soon to college. My depression is, I think, totally over.

Just to reassure everyone: There is happiness after the loss of a loved one.

--Mike

 

[affected]

WEDNESDAY roll call check in time for CALS

@gooseberry - it never ceases to amaze me that people who should realise what their job means to people don't care. I wonder if the person delaying this ever has to wait and becomes anxious or frustrated? So hope it is approved and moving soon.

@atsugi - GO YOU. It's well past time for you to move out into true happiness mate. You can start to think about exactly what you would like to do just for yourself, that will be quite a change!

I've had a reasonable week, slowly I'm having more days each week where I can focus and function for the most part. The mums and their joeys have given my spirits a huge lift. Today I'm attending a lunch meeting for past CALS. This will be the first time for something like this as they haven't run one before. A little nervous but I'm hoping it will be supportive with lots of positives on how to pull yourself together

 

[Nikki J]

Oh so glad to hear it Mike! I do worry about you and the other former CALS. Being one myself I know how devastating the experience is. Recovery takes place on its own schedule. Glad you have come out the other side.

 

[Barbie]

Am also sossososso happy when former CALS share their happiness with me. it gives me personal hope, and because I love my fellow cals so much when they suffer, I really want them to find a new happiness.

I have gone to a chiropractor for the first time ever this week! my shoulders have been killing me--one was injured in a fall (tripped over equipment...) and I have been relying on the other so much that now that one hurts. think I have a pinched nerve...

anyway, so far so good it seems to help at least the pinched nerve. Bad thing is they want you to come in for so many appts.! even though it is fast and in and out the door, gosh I just don't have that much time! but some relief would be great!

my husband had a pulmo appt last week--refused to go. I made the dang appt when he was having all that coughing, now is has subsided so there is no reason in his book to go. oh well.

 

[smoochiegal]

Still here my friends...
Although my PALS is in an awful funk. Wanting it to end. Not able to see the positives in anything. He is quiet, withdrawn and very unhappy.
I do not know how to help him.