I'm late checking in this week! But I'm here, and doing way better than last month. I had some incredible support from people here which I'm so thankful for. I receive a lot from my family here, thank you all!
So much happening for so many of our CALS.
Please do feel free to start your own thread so we can keep track of any issues, but post anything in this free-for-all thread too. I appreciate that some of you at least drop in and let us know things here. I would just like to be able to offer back some better support if you want to start threads. So, I want to make a few replies back to the many things happening. Please forgive me if I miss anyone and keep updating us!
@scared - so much has been happening for you, I hope you keep talking here, we are with you girl!
@janis - how is Douglas doing now? So awful, but it seems he is back home with you?
@sandy - great to see you posting, has the peg been done yet? If not, when is this happening? We have a forum section for pegs, you may find lots of helpful stuff if you poke around in there. Please speak up, we can help. The peg will make both your lives easier and they are a snap to use.
@gem - oh sh!t another fall
how is bj now??
@steph - I'm learning a lot through your threads about this VA assessment and have been thinking of you a lot. Is Julien ok now?
@dj - so good to see you posting. It's truly awful when we can't even communicate effectively. When it is reduced to just being about working out care needs, and difficult to even work that out, it's just soul-wrenching to not be able to reach through and be a part of all that is still going on inside the one we love
@anna - oh so many memories your post brought back. There we are advocating for our PALS, and facing the crap that the health system can produce, and yet agreeing with parts of the advice being given, and doing all we can to care for them in a facility and, and, and, then they take it all out on us like we are the enemy. It's the toughest part. But you know in your heart what you are advocating for, and the love you have for him, so hold to that. I wish you peace in the battle, it's not easy (obvious stupid understatement!), but you are doing all you can to ensure the best care as well as meet his needs. Keep talking, we truly do understand the enormous strain.
@texastc - big wave mate, good to see you log in!!!
@4tloml - good to see you log in too, how are you doing?
I went back as far as my last post here, I hope I didn't miss anyone, keep posting, I am thinking of you all.
I had an exciting meeting today about something, and have come away after being asked many questions about my experience caring for Chris, with a deep understanding of why I want to support CALS and PALS, even nearly 2 years after losing Chris. I would never have made it without support, and that is why I want to support back. love all of you wonderful family