Emanol
Active member
- Joined
- Apr 3, 2018
- Messages
- 67
- Reason
- Loved one DX
- Diagnosis
- 09/2017
- Country
- SP
- State
- NY
- City
- Lugo
First Wednesday checking in...
Dad has been fine. He got an electric bike for himself and has been pedaling well. He is also enjoying physical therapy. Gait is getting worse little by little, the process speeding up over a very cold winter -is it normal that it gets worse at night and is better in the morning? Other parts of his body are still working fine -left hand is clumsy but stable. Unlikely for an ALS patient, he seems to have more and more appetite and has been gaining weight, so those are good news.
We went for a little trip with the family these past few days. We went to the north of Spain, the Basque country. It was the first time we used the wheelchair on a trip (dad still walks, but we use it for long distances). It was nice and he is confronting the disease with great humor, for now. We ate great food, visited the Guggenheim Museum, and enjoyed sightseeing in some of the Game of Thrones locations (Dad is a fan).
Everything is good, as long as one lowers the expectations enough. How is everyone doing?
(By the way, I am not his full-time CALS. Can I still post here? I am still learning to navigate the forum, so I apologize in advance. I mostly live far away but have spent significant periods of time at home since he was diagnosed. Mum is the main caregiver).
Dad has been fine. He got an electric bike for himself and has been pedaling well. He is also enjoying physical therapy. Gait is getting worse little by little, the process speeding up over a very cold winter -is it normal that it gets worse at night and is better in the morning? Other parts of his body are still working fine -left hand is clumsy but stable. Unlikely for an ALS patient, he seems to have more and more appetite and has been gaining weight, so those are good news.
We went for a little trip with the family these past few days. We went to the north of Spain, the Basque country. It was the first time we used the wheelchair on a trip (dad still walks, but we use it for long distances). It was nice and he is confronting the disease with great humor, for now. We ate great food, visited the Guggenheim Museum, and enjoyed sightseeing in some of the Game of Thrones locations (Dad is a fan).
Everything is good, as long as one lowers the expectations enough. How is everyone doing?
(By the way, I am not his full-time CALS. Can I still post here? I am still learning to navigate the forum, so I apologize in advance. I mostly live far away but have spent significant periods of time at home since he was diagnosed. Mum is the main caregiver).