MVFinVA
Distinguished member
- Joined
- Sep 5, 2017
- Messages
- 116
- Reason
- Lost a loved one
- Diagnosis
- 05/2017
- Country
- US
- State
- VA
- City
- S
Tillie - I tried "white noise" that sounded like falling rain on his iPad a while back and he told me to turn it off. Hospice told me to stick with the ambien and ativan, ambien an hour before bed and the ativan right before. It seemed to work last night so we'll see.
Ernie - I cut back on the Christmas decorations too. Have the tree, but bought an artificial, pre-lite one. It was pricey but looks real. It's smaller than usual because the ceiling are lower where it has to be so Dave can join for Christmas morning. We probably have enough ornaments for two trees, but I used less than we usually put up. A representation of every type we have is on it, but not all. I put the nativity we inherited from Dave's parents in his room. Couldn't bring myself to put up a lot of the knick-knacks that are the ones Dave always arranged. No candles in the windows this year. Only an artificial wreath on the door. I used to decorate a real one. Just don't have the emotional energy this year.
This morning had a caregiver so I could go the church. When I got home we worked together to get Dave a shower while on the BiPAP - a two person job. We did it earlier this week and it was fine. But when he got back to the bed he looked awful and his O2 was in the low 80's. I think that was his last shower I know they always made him feel better, so I'm disappointed for him.
I'm praying everything holds steady until after Christmas. Our 24 yo dd hasn't seen her dad since late August, 28 year old dd since October. I would so like them to be able to have this Christmas with their dad. But who knows, as we see time and again on this forum, it's impossible to predict. Things can look like they're headed down and then plateau and stay there a while.
Mary
Ernie - I cut back on the Christmas decorations too. Have the tree, but bought an artificial, pre-lite one. It was pricey but looks real. It's smaller than usual because the ceiling are lower where it has to be so Dave can join for Christmas morning. We probably have enough ornaments for two trees, but I used less than we usually put up. A representation of every type we have is on it, but not all. I put the nativity we inherited from Dave's parents in his room. Couldn't bring myself to put up a lot of the knick-knacks that are the ones Dave always arranged. No candles in the windows this year. Only an artificial wreath on the door. I used to decorate a real one. Just don't have the emotional energy this year.
This morning had a caregiver so I could go the church. When I got home we worked together to get Dave a shower while on the BiPAP - a two person job. We did it earlier this week and it was fine. But when he got back to the bed he looked awful and his O2 was in the low 80's. I think that was his last shower I know they always made him feel better, so I'm disappointed for him.
I'm praying everything holds steady until after Christmas. Our 24 yo dd hasn't seen her dad since late August, 28 year old dd since October. I would so like them to be able to have this Christmas with their dad. But who knows, as we see time and again on this forum, it's impossible to predict. Things can look like they're headed down and then plateau and stay there a while.
Mary