- May 1, 2021
RMT I hope dinner with your parents was enjoyable! We had an enjoyable week end here. My son and his girlfriend came and we designed the Save the Date cards (really they did and PALS and I watched!) and she showed me some bridal dresses she has been looking at. PALS is spending more and more time on the Trilogy, but his eating seems to be okay. He would prefer to be on the Trilogy while he eats, but that doesn't seem possible. Will he have to give up eating because of his respiratory status? As a caregiver I wonder if the tube feedings will be easier. Planning what food to purchase, buying food, putting it away, cooking, often feeding PALS, then cleaning up on top of of the other tasks is work. I also wonder how much time do we have left together. Is there a respiratory test that can give guidance on this?