rmt
Distinguished member
- Joined
- Sep 18, 2019
- Messages
- 376
- Reason
- Lost a loved one
- Diagnosis
- 07/2019
- Country
- US
- State
- WA
- City
- Seattle
V, sorry about your rough night. That sounds terrifying. I'm glad you are going to get to take a pottery class! That sounds so fun!
We had a nice time at my parents' cabin. We stay in the bunk house so we have some privacy. My husband did all his tube feedings out there this time, but I think I have him convinced to come in and eat when we eat next time. My parents adore him and are so supportive and accommodating, so it is just getting him to realize that everybody wants him eat with us rather than hide away in the bunk house. He also totally overdid it trying to help carry things from the boat to the cabin and was exhausted. And then he helped my dad put together a propane fire table, so by the end of the day he was totally spent. Next time I'm hoping he can just relax more. He loves to work and do projects, and is so frustrated he can't do as much as usual. I think partly it is because he is still recovering from the feeding tube procedure, so we are both hopeful that once he is recovered from that he will be able to do more and have more stamina. Not sure how realistic that is, but we can hope!
We have increased the tube feeding calories to 4000 per day. He gained about 10 pounds in the first 3 weeks with the tube, but now he isn't gaining as fast. But as long as we keep heading in the right direction, I guess that is OK.
My husband has some language processing issues that started late last year. He is slower to respond when you ask him a question and he struggles sometimes with finding the right words. He gets his point across eventually, it just takes longer. This was the most time my parents have spent with him and they definitely noticed the change. That was really hard for me. Obviously I noticed the issues, but it was easier to pretend it wasn't too bad when nobody else was seeing it. Other than the language issue, he seems fine mentally. Not sure if this is the beginning of FTD or if it is just going to stay a language issue. Ugh, this disease really sucks.
We had a nice time at my parents' cabin. We stay in the bunk house so we have some privacy. My husband did all his tube feedings out there this time, but I think I have him convinced to come in and eat when we eat next time. My parents adore him and are so supportive and accommodating, so it is just getting him to realize that everybody wants him eat with us rather than hide away in the bunk house. He also totally overdid it trying to help carry things from the boat to the cabin and was exhausted. And then he helped my dad put together a propane fire table, so by the end of the day he was totally spent. Next time I'm hoping he can just relax more. He loves to work and do projects, and is so frustrated he can't do as much as usual. I think partly it is because he is still recovering from the feeding tube procedure, so we are both hopeful that once he is recovered from that he will be able to do more and have more stamina. Not sure how realistic that is, but we can hope!
We have increased the tube feeding calories to 4000 per day. He gained about 10 pounds in the first 3 weeks with the tube, but now he isn't gaining as fast. But as long as we keep heading in the right direction, I guess that is OK.
My husband has some language processing issues that started late last year. He is slower to respond when you ask him a question and he struggles sometimes with finding the right words. He gets his point across eventually, it just takes longer. This was the most time my parents have spent with him and they definitely noticed the change. That was really hard for me. Obviously I noticed the issues, but it was easier to pretend it wasn't too bad when nobody else was seeing it. Other than the language issue, he seems fine mentally. Not sure if this is the beginning of FTD or if it is just going to stay a language issue. Ugh, this disease really sucks.