rmt
Distinguished member
- Joined
- Sep 18, 2019
- Messages
- 379
- Reason
- Lost a loved one
- Diagnosis
- 07/2019
- Country
- US
- State
- WA
- City
- Seattle
@lgelb, that is great advice! We actually had a really good talk today and both agree to work hard to embrace every day as much as possible. We acknowledged that neither of us can fully understand what the other is going through, but that everything will be better if we can prioritize enjoying life and supporting each other. I'm optimistic. I don't want to look back and think, "boy we should have spent more time being happy just being together".
It is so hard knowing that each day is probably the most functional day he'll have, but we are holding on to the hope the new therapies will come out in time for him. Thank you so much for the advice. It is easy to get so caught up in the worst parts.
It is so hard knowing that each day is probably the most functional day he'll have, but we are holding on to the hope the new therapies will come out in time for him. Thank you so much for the advice. It is easy to get so caught up in the worst parts.