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trying to stay positive

Distinguished member
Joined
Sep 17, 2007
Messages
300
Reason
CALS
Diagnosis
08/2007
Country
US
State
Illinois
City
Chicago area
Hi. I hope it's ok that I post here even though I am a CALS, not a PALS. My husband was diagnosed in August of this year, although his first symptoms showed up almost 2 1/2 years ago. My question is about progression. My husband's firsr symptom was weakness in his right wrist and hand. Now over 2 years later, he has weakness, atrophy, cramps and twitches in both arms and hands, shoulders and back. He also tells me that his stomach muscles are feeling weaker.

OK, finally, here is my question. Since he started with limb onset, does this mean that his legs are probably next as opposed to his swallowing and/or breathing muscles? I know that it is different for everyone, but I was wondering if it usually went to all the limbs first when it starts there. I guess I am afraid of when the swallowing and breathing difficulties start. Well, ok I AM SCARED MINDLESS of when that starts. Thanks for any help!

Linda
 

cheryilyn

Active member
Joined
May 22, 2007
Messages
62
Reason
PALS
Diagnosis
Sept. 06
Country
US
State
Oregon
City
Salem
Linda,
i don't think that there is any way to tell what will happen next in this disease. I have bulbar onset and lost my speech first and some swallowiing ability. I got a feeding tube shortly after diagnosis. Then on to my legs and arms. Next i am sure will be a vent as my breathing is going down now. every one here will tell you a different progression. You just have to take one day at a time.
 

Michelle C.

New member
Joined
Oct 15, 2007
Messages
1
Reason
CALS
Diagnosis
01/2007
Country
US
State
Iowa
City
Central City
My husband has ALS and I read somewhere that if it starts in one limb, it will move to the other limb, then extend to the same side of the body that it started in another limb. Make sense?

My hubby started in his right foot, then moved so his left foot was affected, then his right hand and now his left hand is starting. It is proving true in our case, but he is also getting much thinner everywhere except his middle.
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Mine started in limbs annd 4 years later no bulbar symptoms. Touch wood.
AL.
 
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