Scarlett0123
New member
- Joined
- Aug 29, 2018
- Messages
- 6
- Reason
- CALS
- Diagnosis
- 06/2018
- Country
- Us
- State
- Florida
- City
- Tampa
My husband, the love of my life was diagnosed with the slow moving ALS 2 months ago. I have been freaking out and crying and a complete mess. I think I am sort of in control now. He has remained in control the whole time and says that he can’t afford to break down since he does not know how many good days he has left and he will save that for later. Is that normal? They asked me at the ALS clinic if he had accepted the diagnosis and I was not sure what to say. So far most of the muscle wasting and weakness is in his arms. Mild changes in his legs and very mild in his face. We ordered modified items to give him more independence. We do get into small tiffs about him overusing his arms when I can help. Not sure if that is my fault for wanting to save them and not letting him do things at his pace. I am a control freak with an out of control situation. Signed, emotionally exhausted, Scarlett