My als doc is not sure.
I woke up one day with pains as well. I noticed it when after having a baby (about 4 weeks) going to a christmas party and I wore high heel boots. the next day my feet were in soo much pain. That had never happen before. I thought it was from not wearing them in the summer and being pregnant and wearing flip flops. Then I started having those deep pains in my feet and hands along with ankels and knees and wrists. I really thought I had RA or something. I also noticed when I went christmas shopping, that after an hour or so, I felt like a old lady with BAD arthriitis or something. My feet and knee and back hurt and I told my family that we had to sit down....very strange for someone who was playing competitive tennis 4x a week 5 months earlier!
Then the joint cracking. Then the twitching.....it was just one twitch on my hand below my pinkie. I thought it was from holding the bottle. then it exploded to everywhere. During this time I also got sick with colon infection and my thighs hurt. Then I noted the atrophy on my left ankle. Then came then thinning in the hands and b/w thumb and index finger and then the feet.....
I have had 2 emgs, muscle biopsy, brain mri, spinal and lumbar and cevical MRI.....a ton of rheumy bloodwork becasue I had a + ana, but nothing that showed anything. I have no diagnosed and my symptoms continue....
My twitching was getting better but today it was worse than before in my calf, I could see them while driving!
MY pains moved around and still do. THe worst is the dull ache in the thumb and finger. I am holding out the hope and living in the land of denial, it works nicely for me.
I have pushed of my follow up emg untill jan. so say a prayer for me.......
I understand your concern, but it is most likley not als. HOld on to that . I am going with that. I have FINALLY decided to go with the experts untill otherwise. It was a hard choice and I still feel nervous that I have this BUT untill someone says it to me, I will not go there fully.
take care and bless you
april