Jellyfish
Member
- Joined
- Jul 24, 2009
- Messages
- 15
- Reason
- Learn about ALS
- Country
- US
- State
- Texas
- City
- Mesquite
I was reading some old threads of undiagnosed people who had burning muscles after slight use, like brushing hair or holding cell phones. My tongue burns when eating a sandwich like I have been lifting weights with it!
Not a burning as if it were hot. My muscles burn as if they were extremely over worked. I noticed a few diagnosed ALS peeps said they didn't experience this but I can't walk up 2 steps without feeling it. I get the lump in throat feeling and under my tongue and neck area below my tongue, it burns when used. I can't even touch my back teeth without the burning feeling in my tongue.
It's been happening since the weakness and slurred speach started a year ago. MRI is good, myasthenia gravis tests all normal, autoimmune shows positive. It was also positive 30 years ago when they said I had RA.
Single fiber test scheduled for next month. Just wondering if this overworked burning feeling is experienced by anyone who has been diagnosed with ALS.
I barely move and I feel like I have do e a total body workout with burning so bad I have to stop and rest. Then muscles feel so heavy and weak.
From an old post I read, a few said they don't experience the feeling so I thought I'd ask in this forum.
It's really hard to feel all this strange stuff for a year and still be clueless.
Thanks
Not a burning as if it were hot. My muscles burn as if they were extremely over worked. I noticed a few diagnosed ALS peeps said they didn't experience this but I can't walk up 2 steps without feeling it. I get the lump in throat feeling and under my tongue and neck area below my tongue, it burns when used. I can't even touch my back teeth without the burning feeling in my tongue.
It's been happening since the weakness and slurred speach started a year ago. MRI is good, myasthenia gravis tests all normal, autoimmune shows positive. It was also positive 30 years ago when they said I had RA.
Single fiber test scheduled for next month. Just wondering if this overworked burning feeling is experienced by anyone who has been diagnosed with ALS.
I barely move and I feel like I have do e a total body workout with burning so bad I have to stop and rest. Then muscles feel so heavy and weak.
From an old post I read, a few said they don't experience the feeling so I thought I'd ask in this forum.
It's really hard to feel all this strange stuff for a year and still be clueless.
Thanks