Buried Bumper Syndrome x2

Scotiaspirit

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Dear Pals, I have had a rare complication of Peg Tubes. In October 2018, button stopped rotating and my GP sent a consult to GI surgery. Due to several GI specialists retiring and leaving our city, they were backed up by 45-60 days. A week before my appt in mid December, I got very severe abdominal pain, and no feed or fluids would go through my Peg tube. A CT Scan dx with Buried Bumper Syndrome had to have gastrosciopic surgery, and new Peg with button was inserted. Within days developed a serious infection in the wall of my stomach, thankfully no leakage in Peritonium. BBS is a medical emergency!
 

Scotiaspirit

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PALS
Diagnosis
11/2015
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Nova Scotia
City
Dartmouth
On Jan 3 2020, presented with severe mid abdominal pain, ER doc tried putting water through tube, discharged me without doing X-ray or scan. Hours later, nurse that infuses my Radicava did not like look of stomach. Was sent to ER again, GI doc did X-ray and CT Scan DX was buried bumper syndrome again 2nd time in less than 3 1/2 weeks. Admitted to hospital, gastroscopic surgery done to remove it. I had long apnea’s but likely won’t be candidate for GI scope or any surgery requiring anesthesia or sedation going forward. Long tube inserted to see if it will heal. If not, it will be removed permanently within 3x wks to mth. Now it is infected, on antibiotics. In days, I should see either improvement or worsening. If infection sptreads, high risk of sepsis.
 

lgelb

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I hope the infection resolves soon! If there are no signs of improvement in a day or two, I would ask for an infectious disease consult.

Also, if you need more procedures, often they can be done in interventional radiology on your BiPAP.

Best,
Laurie
 

Scotiaspirit

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Nova Scotia
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Dartmouth
I hope the infection resolves soon! If there are no signs of improvement in a day or two, I would ask for an infectious disease consult.

Also, if you need more procedures, often they can be done in interventional radiology on your BiPAP.

Best,
Laurie
Thanks for that info Laurie. I mentioned a RIG placement and the GI people were not warm to the idea this time. I had my BiPap at my hospital room, but this GI surgeon and Gastroenterologist were not familiar with me, my GI Doc retired in 2017, and my surgeon that I usually have was at a different hospital. I am waiting to be connected to a new GI specialist.
 

lgelb

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The GI people are seldom warm to it, since they can view radiology as competition. For me, it would be worth it to insist on an IR consult, with the rationale being your complications and leaning into legal/risk management considerations as needed, which I presume exist in some form even with a single payer system. There is ample literature suggesting reduced aspiration risk with a radiology setting and reduced respiratory risk using BiPAP during a procedure that takes any appreciable time.
 

Kristina1

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wow, im so sorry you're dealing with this. :( I hope you recover this time without any more complications.
 

nona

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What a nightmare! I hope you heal better this time around and can put this crap behind you.
 

KimT

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So sorry you're dealing with all this. I second Laurie's suggestion of getting an ID doctor involved.
 

beauty4everyone

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So very sorry about all the health challenges. Hope doctors ⚕👩‍🔬👨‍🔬 ⚕will develop an effective treatment plan that will help you heal soon. May it be so! May Blessings abound 🌈 . B.
 
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