Kimsayty
New member
- Joined
- Jul 1, 2022
- Messages
- 3
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- NJ
- City
- Metuchen
I’m 34 and having a rough time with bulbar symptoms for a few months now. I have a hard time clearing my throat and have to double swallow water and even food sometimes to get it down. Food gets stuck in my cheeks when I eat- not everything but foods like nuts, crunchy chocolate. My neurologist says the food is getting stuck between my cheeks and neck flexors. My saliva sits in the back of my throat or feels like it does and I just can’t clear it. I cough sometimes after water. My tongue often is thick or feels stiff and I articulate words wrong at times. I’ve posted here in the past but honestly could not remember what my username was.
My neurologist was leaning toward Mg bc I also have ptosis. Now I was given Ivig and I’m four days out without any improvement and actually feel somewhat worse as in weaker. The worst part is I’ve noticed what appears to be atrophy in my cheeks and neck. I also lost a bunch of weight over the last 8 months without trying. I’m petite as it is. I’m worried of course because I really thought I had MG and I have three little kids that need their mama. Als has always been in the back of my mind since these symptoms appeared but now I’m starting to think it may actually be als. It has progressed since this all started. Also- My grandmother died of bulbar als in her 50s.
I have had a few emgs which were “clean” but I just don’t know if they were all that thorough, they were performed quickly. I see my neurologist again on July 25.
Any thoughts on all of this? Does this look like atrophy? Seem like als? Obviously I’m following up soon regardless.
My neurologist was leaning toward Mg bc I also have ptosis. Now I was given Ivig and I’m four days out without any improvement and actually feel somewhat worse as in weaker. The worst part is I’ve noticed what appears to be atrophy in my cheeks and neck. I also lost a bunch of weight over the last 8 months without trying. I’m petite as it is. I’m worried of course because I really thought I had MG and I have three little kids that need their mama. Als has always been in the back of my mind since these symptoms appeared but now I’m starting to think it may actually be als. It has progressed since this all started. Also- My grandmother died of bulbar als in her 50s.
I have had a few emgs which were “clean” but I just don’t know if they were all that thorough, they were performed quickly. I see my neurologist again on July 25.
Any thoughts on all of this? Does this look like atrophy? Seem like als? Obviously I’m following up soon regardless.
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