Val
New member
- Joined
- Jun 29, 2022
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- CA
- State
- BC
- City
- London
Hello,
I came to the forum because I have a history of als anxiety. That said, I’ve had quite a plethora of neurological issues and even been tested for MS, so I “got used to” twitching and cramping. However this time there are new symptoms and they feel much more insidious.
For about two months now I’ve been having issues with swallowing. It started as a weird sensation of food stuck at the back of my throat and a perceived effort to push it down. At this stage I”m able to do that but I get a wet voice and sometimes a bit of throat clearing after eating as well as some small amount of water in my nose after drinking. When not eating or drinking there is a sensation of something in my throat (like phlegm) and I’m constantly swallowing. i’ve also woken up a couple of times from severe coughing. Then there throat spasms, tightnes, facial stiffness, cramps and twitching in areas around my mouth and tongue. Speech feels off as if it required more effort (early slurring?) I’m 38 y.o female. The EMG specialist I saw privately (she tested me the first time I had suspicions of als) refused to do the bulbar test on the grounds that I’m young and she doesn’t see any characteristic issues. So the question is are they typical? I’ve developed a severe food and drink anxiety and at the same time waiting for my neuro/EMG appointment makes me physically sick. How do you help yourself at this point? I can hardly eat and my metal state is deteriorating.
Thank you and looking forward to your responses.
I came to the forum because I have a history of als anxiety. That said, I’ve had quite a plethora of neurological issues and even been tested for MS, so I “got used to” twitching and cramping. However this time there are new symptoms and they feel much more insidious.
For about two months now I’ve been having issues with swallowing. It started as a weird sensation of food stuck at the back of my throat and a perceived effort to push it down. At this stage I”m able to do that but I get a wet voice and sometimes a bit of throat clearing after eating as well as some small amount of water in my nose after drinking. When not eating or drinking there is a sensation of something in my throat (like phlegm) and I’m constantly swallowing. i’ve also woken up a couple of times from severe coughing. Then there throat spasms, tightnes, facial stiffness, cramps and twitching in areas around my mouth and tongue. Speech feels off as if it required more effort (early slurring?) I’m 38 y.o female. The EMG specialist I saw privately (she tested me the first time I had suspicions of als) refused to do the bulbar test on the grounds that I’m young and she doesn’t see any characteristic issues. So the question is are they typical? I’ve developed a severe food and drink anxiety and at the same time waiting for my neuro/EMG appointment makes me physically sick. How do you help yourself at this point? I can hardly eat and my metal state is deteriorating.
Thank you and looking forward to your responses.