janicebuf
Active member
- Joined
- Jul 6, 2005
- Messages
- 36
- Reason
- Loved one DX
- Diagnosis
- 00/0000
- Country
- US
- State
- NY
- City
- east amherst
Hi again everyone! I don't know if you all remember me writing but I talked about my brother who has been exhibiting Bulbar symptoms....We went to the neuro and he did an EMG~it wasn't 'clean' as he noticed something in both of his arms (nerve damage? i am not sure) he repeatedly asked him about his strength. His strength is fine. Anyway, he re examined him thoroughly including making him push his tongue against his cheek, etc... everything was fine. he can't understand why he can't pucker or whistle as it seems he has no other problems except for sensory loss in both of his cheeks. Remember this is familial so we are very nervous. The neuro is doing bloodwork and aside from that, has told us only time will tell...he seemed a bit baffled. In speaking to my brother today, he mentioned that last night he started having some twitching in both of his cheeks. It lasts a second or two and then goes away for a few hours. As you can imagine, I am fearful for him. Any thoughts anyone? Thanks (again) Janice