Rickopj1989
New member
- Joined
- Nov 16, 2022
- Messages
- 8
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
I have been on here twice. I have had muscle twitching all over from head to toe. Got diagnosed 10 years ago with bfs. 10 years on iv had swallowing issues, speach issues etc, saw a neurologist recently, they looked at me for all of 45 seconds and said no atrophy on tongue, no extreme fasiculations, no jaw issues after tapping with instrument.... I put this because after previous posts I was so angry with members dismissing or saying my symptoms were not consistent with als/mnd. I knew I had it, 100%. But they were right, and I was wrong. The look of unconcern from an expert said all I needed to know. I have all the same symptoms now but it's 6 months on and no worse. Anyone in this vicious cycle please take the reassurance from members on here when they say its unlikely. Take comfort and when you have the proper medical prognosis.... believe it!! To anyone with this horrible illness, I'll do my upmost to raise funds and spread awareness! Thank you
