Ashleymorrivera
Member
- Joined
- Oct 13, 2016
- Messages
- 12
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- NJ
- City
- Old bridge
Coming here to see if my bulbar symptoms sound like bulbar onset ALS. I was here many years ago almost 8 years to be exact and was cleared by a neuro. Although, I hope that doesn’t discredit this post getting any replies.
Symptoms started about 2 months ago with a feeling of my head being hard to hold up and left side of neck feeling of something being pulled when I turned to the left. After a vacation to Disney I came back and had horrible headaches at the base of my skull with visual blurriness and neck/shoudler pain.
I had a CT in the ER which said I may have Chiari malformation and I made an appt with a neuro to follow up. In the meantime the headaches subsided and right sided weakness and twitching, muscle cramping started.
Neuro noted the difference in my thumb muscles (which I always had but looks more pronounced now) and said she would do an emg of my right arm to rule out ulnar nerve neuropathy but didn’t have a concern otherwise.
MRI was normal. And I’m awaiting a follow up next week with neuro. In the meantime she gave me muscle relaxers ive taken on and off and I asked for anxiety meds which I took for a week and then stopped because of horrible nausea and inability to eat. And I saw a chiropractor to try something else who agreed there was a slight difference in muscle bulk of my right back/shoulder muscles.
The muscle twitching and cramping continues especially in the right side of muscles that appear smaller. And right arm is shaky and weaker, although I can still do things I need to it’s much harder to do them especially picking up my children.
In the last 2 weeks it feels like I have marbles in my mouth when I try to speak, tongue feels clumsy and some of my words come out slurred as well as fluids not going all the way down, a little comes back up and sits in my throat until I swallow again and feels like it’s coming just up to my nose. My tongue tingles and lower jaw feels like there’s bugs crawling around in it. I feel some twitching in the left of my jaw under the bone, as well as the muscle in my is smaller on that side than the right when I bite down. Jaw feels tired and strained when smiling for too long or chewing.
I’ve had chronic fatigue for sometime but PCP always writes it off as working nights and having small children because labs are always normal.
Most concerning is the left jaw/bulbar symptoms and right sided back muscle difference.
Symptoms started about 2 months ago with a feeling of my head being hard to hold up and left side of neck feeling of something being pulled when I turned to the left. After a vacation to Disney I came back and had horrible headaches at the base of my skull with visual blurriness and neck/shoudler pain.
I had a CT in the ER which said I may have Chiari malformation and I made an appt with a neuro to follow up. In the meantime the headaches subsided and right sided weakness and twitching, muscle cramping started.
Neuro noted the difference in my thumb muscles (which I always had but looks more pronounced now) and said she would do an emg of my right arm to rule out ulnar nerve neuropathy but didn’t have a concern otherwise.
MRI was normal. And I’m awaiting a follow up next week with neuro. In the meantime she gave me muscle relaxers ive taken on and off and I asked for anxiety meds which I took for a week and then stopped because of horrible nausea and inability to eat. And I saw a chiropractor to try something else who agreed there was a slight difference in muscle bulk of my right back/shoulder muscles.
The muscle twitching and cramping continues especially in the right side of muscles that appear smaller. And right arm is shaky and weaker, although I can still do things I need to it’s much harder to do them especially picking up my children.
In the last 2 weeks it feels like I have marbles in my mouth when I try to speak, tongue feels clumsy and some of my words come out slurred as well as fluids not going all the way down, a little comes back up and sits in my throat until I swallow again and feels like it’s coming just up to my nose. My tongue tingles and lower jaw feels like there’s bugs crawling around in it. I feel some twitching in the left of my jaw under the bone, as well as the muscle in my is smaller on that side than the right when I bite down. Jaw feels tired and strained when smiling for too long or chewing.
I’ve had chronic fatigue for sometime but PCP always writes it off as working nights and having small children because labs are always normal.
Most concerning is the left jaw/bulbar symptoms and right sided back muscle difference.