Swedengirl
New member
- Joined
- Feb 9, 2022
- Messages
- 6
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- SE
My English may be pour sometimes…
4 years ago I noticed that when I had just 1 beer or 1 glas of wine, something happened to my speach and I could not say any cononants like K S L P etc, only vocal sounds (this was very strange. I had an antidepressive medication called Mirtazapine, which is a bit calming also, at night after I ha taken this med, I couldt speak at all.
A few mounth later I noticed that I couldnt sing as I used to, and I couldt talk as fast as I was used to either. I also started to only sip water slowly, This was august -18. The voice got worse and I began struggle to talk, it vas very hard, more like tensions than weakness, but I cold se that my ring cheek wasnt as wrinkled as I used to be.In spring -19 I had problems with spitting and a strange feeling in my lips begun, it felt strange to smile. In Dec -19 I did an clean EMG and an other one also clean about in feb -20. and when eating it started to feel strange and the food wold stop far back in my tounge sometimes. I have done 3 MRI and nothing was showed .
In Juni -20 I did another EMG it was clen but it showed something in singelfiber emg in my lips.
Since june -20 I havnt done any more EMG. Today I can hardly speak and my tounge is weak and tense. My lips are ”halfdead” I have a crooked smile. My facemuscles are getting weaker day by day.
My muscle in my troath that cuffs is gone so every morning I havet o huff if you know what I mean, I breath good, and I regurlarly test this at home. But its lack of breath when I speak. Icant say that my jaws is weak either, I chew like normal. But there is a strange tense in the jaw mouth tounge, Its weakness combined with tension.
I also have problems handeling food in my mouth from side to side, and I swallow slowlier but I can svallow OK. I have had this cramps in my throat, and that have been the worst to have, but my doctor gave me an exercise, so I havnt had that for about 6 month.
In genaral I feel great, I am strong, no weightloss and I am never tired. I work 5 days a week, but I am not that social any longer, I mostly hang out with my children and grandchildren, and life is good, but what will happen in 1 month, 1year?? I will soon have another EMG and I guess it will be clearer what I have. Anyway today I will start taking Rulizol, not that my doctor forced it on me, but I want it incase it should be ALS. And have anyone of you been affected by alcohol like me, the only time I heard about it was a guy that had Myasteni a gravis, and that I dont have. I would like to here your experiences. It is now soon 4 years since the first symtom.
4 years ago I noticed that when I had just 1 beer or 1 glas of wine, something happened to my speach and I could not say any cononants like K S L P etc, only vocal sounds (this was very strange. I had an antidepressive medication called Mirtazapine, which is a bit calming also, at night after I ha taken this med, I couldt speak at all.
A few mounth later I noticed that I couldnt sing as I used to, and I couldt talk as fast as I was used to either. I also started to only sip water slowly, This was august -18. The voice got worse and I began struggle to talk, it vas very hard, more like tensions than weakness, but I cold se that my ring cheek wasnt as wrinkled as I used to be.In spring -19 I had problems with spitting and a strange feeling in my lips begun, it felt strange to smile. In Dec -19 I did an clean EMG and an other one also clean about in feb -20. and when eating it started to feel strange and the food wold stop far back in my tounge sometimes. I have done 3 MRI and nothing was showed .
In Juni -20 I did another EMG it was clen but it showed something in singelfiber emg in my lips.
Since june -20 I havnt done any more EMG. Today I can hardly speak and my tounge is weak and tense. My lips are ”halfdead” I have a crooked smile. My facemuscles are getting weaker day by day.
My muscle in my troath that cuffs is gone so every morning I havet o huff if you know what I mean, I breath good, and I regurlarly test this at home. But its lack of breath when I speak. Icant say that my jaws is weak either, I chew like normal. But there is a strange tense in the jaw mouth tounge, Its weakness combined with tension.
I also have problems handeling food in my mouth from side to side, and I swallow slowlier but I can svallow OK. I have had this cramps in my throat, and that have been the worst to have, but my doctor gave me an exercise, so I havnt had that for about 6 month.
In genaral I feel great, I am strong, no weightloss and I am never tired. I work 5 days a week, but I am not that social any longer, I mostly hang out with my children and grandchildren, and life is good, but what will happen in 1 month, 1year?? I will soon have another EMG and I guess it will be clearer what I have. Anyway today I will start taking Rulizol, not that my doctor forced it on me, but I want it incase it should be ALS. And have anyone of you been affected by alcohol like me, the only time I heard about it was a guy that had Myasteni a gravis, and that I dont have. I would like to here your experiences. It is now soon 4 years since the first symtom.