- Aug 20, 2008
Hi I am new. I am worried. my mother had PBP and passed away in 2000. The last few months I have had difficulty with swallowing, and now my speech is difficult. I have read lately MND or ALS is genetic. Maybe I have it? Just need some help and support, feel so alone. My husband died in a car crash 2 years ago, I have ME/CFS. I am 63. Have 3 sons but they did not see my mother so they have not clued on yet, and dont want to tell them until I am sure. I am keen on any alternative treatments. Anything reallY!