BoxersRule
Active member
- Joined
- Feb 3, 2008
- Messages
- 37
- Reason
- Learn about ALS
- Country
- US
- State
- al
- City
- birmingham
Hey just recently cleared 100% of LIMB ONSET ALS- due to fasciculations at random all over my body at different times and places and NONE In one spot that stays. My emg was clean- Nothing was found- 1 fasic which showed as normal no other potentials etc.
Now I am freaking out over BULBAR ISSUES. MY neuro won't even entertain it as I show no signs of it and I've been dealing w/ this widespread crap for almost 6 months now- not to mention when it happened 20 something months ago and went way.
Anyhow they did NOT test the bulbar muscles via EMG because I had fasciculations ALL OVER at the time of EMG and 2 clinicals so they said it didnt matter- if I was fasciculating from ALS it would SHOW EMG changes at this juncture.
My question is. BULBAR PALS, did you have random widespread fascics?
thump here or there or was it localized to face. MY neuro and my psych are about done with me. They say I am really killing myself w/ anxiety. I had 10 muscles tested. I have the EMG report right here.
I dont even know if I want the answer to the question I asked but I Was told IT DOESNT PRESENT with LIMB FASICS , HOWEVER it can spread to that but by then it will show on EMG.
HELP ME, I feel like ending my life- but beautifully I have baby inside of me due in a few days.
DeeDee (my neuro DOES have ALS patients and BULBAR patients)
Now I am freaking out over BULBAR ISSUES. MY neuro won't even entertain it as I show no signs of it and I've been dealing w/ this widespread crap for almost 6 months now- not to mention when it happened 20 something months ago and went way.
Anyhow they did NOT test the bulbar muscles via EMG because I had fasciculations ALL OVER at the time of EMG and 2 clinicals so they said it didnt matter- if I was fasciculating from ALS it would SHOW EMG changes at this juncture.
My question is. BULBAR PALS, did you have random widespread fascics?
thump here or there or was it localized to face. MY neuro and my psych are about done with me. They say I am really killing myself w/ anxiety. I had 10 muscles tested. I have the EMG report right here.
I dont even know if I want the answer to the question I asked but I Was told IT DOESNT PRESENT with LIMB FASICS , HOWEVER it can spread to that but by then it will show on EMG.
HELP ME, I feel like ending my life- but beautifully I have baby inside of me due in a few days.
DeeDee (my neuro DOES have ALS patients and BULBAR patients)