Hmy1972
Member
- Joined
- Sep 20, 2022
- Messages
- 10
- Reason
- PALS
- Diagnosis
- 09/2023
- Country
- US
- State
- KY
- City
- Crestwood
I will try to be brief. Around October of 2021 I began slurring my words after only one drink of alcohol. I thought, WOAH, I can't handle alcohol anymore and quit drinking altogether.
Starting in Feb/March 2022 I began choking when I was swallowing certain foods. I have a history of vocal cord polyps so I assumed they returned and were impinging on my ability to swallow. I made an appointment with an ENT. They scheduled a swallow study. It showed some difficulties completely swallowing my food bolus. The SLP also noticed fasciculations in my tongue. Luckily she worked for a Neurologist in town whom she got me in to see relatively quickly (about two months later).
Prior to this appointment with the Neuro I began choking randomly. When I was eating, when I was sleeping, when I tried to swallow my saliva. I also began slurring my words daily. It was worse in the evenings when I was tired. But present at all times.
The Neuro ordered a slew of blood tests and an MRI. The blood tests came back negative for any disease process that could be causing my symptoms. He ordered a NCS, EMG and since the MRI came back with a few white matter lesions the Neuro sent me to a MS Neuro specialist. They performed a lumbar puncture. NO Obands were present. The MS Specialist stated she did not believe my issues were from MS. Although there were lesions they were not in the location that would be causing my issues.
In the meantime the EMG and NCS were performed. The EMG results were minimally abnormal. They were at a loss. They referred me to Mayo Clinic. I have attached the NCS and EMG results from Mayo. Mayo also conducted a Neurofilament Light chain serum test. The results were 54.4 (should be less than 20.8).
I also have begun to experience muscle spasms in both forearms that cause some of my fingers to become rigid and flex towards my palms. I have leg spasms and spasms in my feet at night. I also have a weird rolling type of muscle spasm in the region of my diaphragm.
Notes from EMG
CLINICAL INTERPRETATION: Abnormal study. The findings are subtle and possibly consistent with a
chronic neurogenic process affecting the anterior horn cells or their axons in a patchy
distribution primarily involving the bulbar and cervical levels. A follow-up study in 3-6 months
may be useful to further assess for progression. There is no evidence of a myopathy or
neuromuscular junction transmission defect on the current study.
Any insight would be greatly appreciated.
Starting in Feb/March 2022 I began choking when I was swallowing certain foods. I have a history of vocal cord polyps so I assumed they returned and were impinging on my ability to swallow. I made an appointment with an ENT. They scheduled a swallow study. It showed some difficulties completely swallowing my food bolus. The SLP also noticed fasciculations in my tongue. Luckily she worked for a Neurologist in town whom she got me in to see relatively quickly (about two months later).
Prior to this appointment with the Neuro I began choking randomly. When I was eating, when I was sleeping, when I tried to swallow my saliva. I also began slurring my words daily. It was worse in the evenings when I was tired. But present at all times.
The Neuro ordered a slew of blood tests and an MRI. The blood tests came back negative for any disease process that could be causing my symptoms. He ordered a NCS, EMG and since the MRI came back with a few white matter lesions the Neuro sent me to a MS Neuro specialist. They performed a lumbar puncture. NO Obands were present. The MS Specialist stated she did not believe my issues were from MS. Although there were lesions they were not in the location that would be causing my issues.
In the meantime the EMG and NCS were performed. The EMG results were minimally abnormal. They were at a loss. They referred me to Mayo Clinic. I have attached the NCS and EMG results from Mayo. Mayo also conducted a Neurofilament Light chain serum test. The results were 54.4 (should be less than 20.8).
I also have begun to experience muscle spasms in both forearms that cause some of my fingers to become rigid and flex towards my palms. I have leg spasms and spasms in my feet at night. I also have a weird rolling type of muscle spasm in the region of my diaphragm.
Notes from EMG
CLINICAL INTERPRETATION: Abnormal study. The findings are subtle and possibly consistent with a
chronic neurogenic process affecting the anterior horn cells or their axons in a patchy
distribution primarily involving the bulbar and cervical levels. A follow-up study in 3-6 months
may be useful to further assess for progression. There is no evidence of a myopathy or
neuromuscular junction transmission defect on the current study.
Any insight would be greatly appreciated.
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