Battilest
New member
- Joined
- Mar 19, 2022
- Messages
- 3
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
Good morning/night everyone!
I just have a few questions about bulbar als I am hoping to get some answers to
Background: 20yrM (almost 21)
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In late February I had a NCS/EMG done on my arm and leg because I was dealing with some issues with tingling and weakness (Im aware tingling isn't an ALS symptom, but that's why I got the EMG done) and everything came back fine: Stable motor neurons, no Fibs or + sharp waves, or any signs of nerve deterioration. The only thing he saw were Fasciculations. I didn't believe that my body symptoms were due to ALS but my neuro suggested it thinking it could be neuropathy etc. also my neuro exam went well when I saw him early Feb before the EMG. My body symptoms have seemed to all get better even the fasciculations for the most part.
However all of a sudden my eating and drinking has felt off, I am a naturally anxious person and take prescribed medication for it and see a therapist quite frequent. I am not sure if my swallowing symptoms line up with what bulbar symptoms are like when it first onsets, but they havent gotten better for about a week and it is giving me a bit of anxiety.
Questions
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1) If I had Bulbar onset would it be shown on a body EMG if my symptoms were strictly in my throat/bulbar region
2) Ive read that Bulbar ALS swallowing issues is usually choking on food/drinks, mine is more of a food seems to slip into my throat from my mouth and or it sticks to the very back of my tongue or throat right by the epiglottis. I haven't really choked on anything.
3)Does Bulbar ALS usually happen in JALS, I know ALS in general is relatively rare especially in people less than 25yrs, I know anything is possible but is it a common form in JALS
4) Would a Barium Swallow show if these issues were due to Bulbar ALS? or how do they diagnose Bulbar since its different from spine onset
5) is it common for bulbar to show up in the throat/swallowing before it effects speaking? or does speaking usually come first then swallowing?
6) Could this all just be anxiety? can anxiety make you feel like you have swallowing issues/sensations but in reality you are fine? Like I can go run a tap and drink from it fine, it just seems as I think about it, i get the sensation that its going down the wrong pipe
Thank You for any answers you can give me
I just have a few questions about bulbar als I am hoping to get some answers to
Background: 20yrM (almost 21)
--------------
In late February I had a NCS/EMG done on my arm and leg because I was dealing with some issues with tingling and weakness (Im aware tingling isn't an ALS symptom, but that's why I got the EMG done) and everything came back fine: Stable motor neurons, no Fibs or + sharp waves, or any signs of nerve deterioration. The only thing he saw were Fasciculations. I didn't believe that my body symptoms were due to ALS but my neuro suggested it thinking it could be neuropathy etc. also my neuro exam went well when I saw him early Feb before the EMG. My body symptoms have seemed to all get better even the fasciculations for the most part.
However all of a sudden my eating and drinking has felt off, I am a naturally anxious person and take prescribed medication for it and see a therapist quite frequent. I am not sure if my swallowing symptoms line up with what bulbar symptoms are like when it first onsets, but they havent gotten better for about a week and it is giving me a bit of anxiety.
Questions
-----------
1) If I had Bulbar onset would it be shown on a body EMG if my symptoms were strictly in my throat/bulbar region
2) Ive read that Bulbar ALS swallowing issues is usually choking on food/drinks, mine is more of a food seems to slip into my throat from my mouth and or it sticks to the very back of my tongue or throat right by the epiglottis. I haven't really choked on anything.
3)Does Bulbar ALS usually happen in JALS, I know ALS in general is relatively rare especially in people less than 25yrs, I know anything is possible but is it a common form in JALS
4) Would a Barium Swallow show if these issues were due to Bulbar ALS? or how do they diagnose Bulbar since its different from spine onset
5) is it common for bulbar to show up in the throat/swallowing before it effects speaking? or does speaking usually come first then swallowing?
6) Could this all just be anxiety? can anxiety make you feel like you have swallowing issues/sensations but in reality you are fine? Like I can go run a tap and drink from it fine, it just seems as I think about it, i get the sensation that its going down the wrong pipe
Thank You for any answers you can give me