suziQ
Active member
- Joined
- Oct 30, 2021
- Messages
- 33
- Reason
- PALS
- Diagnosis
- 10/2021
- Country
- US
- State
- MI
New, overwhelmed. Diagnosis confirmed with second opinion this past Tuesday. Started rilutek yesterday. no known side effects right now. The doctor who initially diagnosed me and will be treating me also mentioned Radicava. The doctor who gave me the second opinion said she wasn't impressed with it, wondering what anyone who has received it thinks of it.
Currently working but planning to take disability after the first of the year if not sooner. Onset is bulbar but i can still speak, eat and breath well.
Live alone in a third floor apartment but planning on moving to a first floor no stairs apartment so i don't have to move again as this progresses.
redoing my wlll and stuff after the first of the year.
any info is appreciated particularly from those dealing with this themselves.
Currently working but planning to take disability after the first of the year if not sooner. Onset is bulbar but i can still speak, eat and breath well.
Live alone in a third floor apartment but planning on moving to a first floor no stairs apartment so i don't have to move again as this progresses.
redoing my wlll and stuff after the first of the year.
any info is appreciated particularly from those dealing with this themselves.