gregmandell2
New member
- Joined
- Jul 7, 2017
- Messages
- 4
- Reason
- Learn about ALS
- Country
- us
- State
- va
- City
- manassas
Howdy everyone, my name is Greg. It seems there is another Greg Mandell here since the username gregmandell was taken 
My father got diagnosed with ALS when he was 65, started in his right foot. I have lurked this forum for a while since he was diagnosed in 2011.
I still lurk the DIHALS section from time to time to see what kinds of things people are experiencing. There have been a lot of posts about Bulbar onset lately, and perhaps that has just gotten me to think too hard about it, but I'd like to hear your guys' opinions if possible.
After reading about the third bulbar thread about people "feeling" like they can't talk, this has also started to be the case for me. Something just feels off. As far as I can tell though, it sounds normal. I started going to a psychiatrist shortly after my father was diagnosed and upon expressing these concerns to him, he recorded me speaking and it sounded perfect to both of us. I can't pinpoint what I think is wrong with it. I went to my GP about this as well and he looked at my tongue, said my tongue strength is fine, and that my voice was perfectly normal to him.
Since this started happening, I've also felt like I've had some problems swallowing. My GP said this is almost certainly due to anxiety. He did not think it was necessary to refer me to any specialists.
Nobody has commented on my speech, though my wife has told me that I have been stumbling on my words a lot more. I can repeat it fine the second time, but I seem to just be getting tripped up.
After reading this over, I realize that my case is pretty much the same as the others who have posted on here with just a couple differences. I am older, and somebody else (my wife) commented on my tripping up on my words. Not slurring, just jumbling them up when I get tripped up and having to restart.
It seems this format of questions is helpful for getting answers easier:
1) How often do the person who is slurring notice that they are slurring before others?
2) In those cases, how long until other people would be likely to notice?
3) Without any progression, should I bother seeking a neurologist privately?
Thank you guys for taking the time. The more I read over this the more I almost feel silly posting it, but maybe somebody will have something to say.
My father got diagnosed with ALS when he was 65, started in his right foot. I have lurked this forum for a while since he was diagnosed in 2011.
I still lurk the DIHALS section from time to time to see what kinds of things people are experiencing. There have been a lot of posts about Bulbar onset lately, and perhaps that has just gotten me to think too hard about it, but I'd like to hear your guys' opinions if possible.
After reading about the third bulbar thread about people "feeling" like they can't talk, this has also started to be the case for me. Something just feels off. As far as I can tell though, it sounds normal. I started going to a psychiatrist shortly after my father was diagnosed and upon expressing these concerns to him, he recorded me speaking and it sounded perfect to both of us. I can't pinpoint what I think is wrong with it. I went to my GP about this as well and he looked at my tongue, said my tongue strength is fine, and that my voice was perfectly normal to him.
Since this started happening, I've also felt like I've had some problems swallowing. My GP said this is almost certainly due to anxiety. He did not think it was necessary to refer me to any specialists.
Nobody has commented on my speech, though my wife has told me that I have been stumbling on my words a lot more. I can repeat it fine the second time, but I seem to just be getting tripped up.
After reading this over, I realize that my case is pretty much the same as the others who have posted on here with just a couple differences. I am older, and somebody else (my wife) commented on my tripping up on my words. Not slurring, just jumbling them up when I get tripped up and having to restart.
It seems this format of questions is helpful for getting answers easier:
1) How often do the person who is slurring notice that they are slurring before others?
2) In those cases, how long until other people would be likely to notice?
3) Without any progression, should I bother seeking a neurologist privately?
Thank you guys for taking the time. The more I read over this the more I almost feel silly posting it, but maybe somebody will have something to say.
