Vivz
Member
- Joined
- Dec 21, 2020
- Messages
- 16
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
- State
- UK
- City
- London
Hi everyone,
I am a 32 year old female worried that I might have bulbar onset als. I hope you can help me with some information on bulbar onset als. I struggle with articulating certain worlds like "cooking" , "cleaning" , etc. I also have a lot of saliva in my mouth and often choke on liquids. My voice gets hipernasal and an ENT doctor confirmed that I have weakness of my soft palate (he doesnt know the cause but the right side does not lift as high as the left one). Another ENT said my vocal cords have reduced movement on inspiration. I also have widespread twitching that moves in different areas. Anyway, I ve seen a neurologist and I had a full body emg test including the tongue which came back normal. Have you heard of bulbar onset als with normal emg? I had these symptoms for about 8 months now, slowly getting worse. So I am just on wait and see approach and see if anything else develops. But I am naturally very worried. Thank you all for your help.
I am a 32 year old female worried that I might have bulbar onset als. I hope you can help me with some information on bulbar onset als. I struggle with articulating certain worlds like "cooking" , "cleaning" , etc. I also have a lot of saliva in my mouth and often choke on liquids. My voice gets hipernasal and an ENT doctor confirmed that I have weakness of my soft palate (he doesnt know the cause but the right side does not lift as high as the left one). Another ENT said my vocal cords have reduced movement on inspiration. I also have widespread twitching that moves in different areas. Anyway, I ve seen a neurologist and I had a full body emg test including the tongue which came back normal. Have you heard of bulbar onset als with normal emg? I had these symptoms for about 8 months now, slowly getting worse. So I am just on wait and see approach and see if anything else develops. But I am naturally very worried. Thank you all for your help.