jcmatch
Member
- Joined
- May 9, 2017
- Messages
- 14
- Reason
- Loved one DX
- Diagnosis
- 05/2017
- Country
- UK
- State
- London
- City
- London
My husband finally had his diagnosis of Bulbar Onset confirmed last week and we are naturally devastated. Whilst he wants to know nothing about what might come next and when, I feel i really want to know everything and need to know what to expect. I have read many posts on here and everyone is so encouraging and helpful, i hope you don't mind me asking these questions.
I do appreciate that every case is different and everyone progresses at different speeds, but if anyone can give me their experience of timelines for complete loss of speech, swallowing and breathing issues I would be very grateful.
My husband started slurring his speech back in December 2016, 6 months later he is still talking and very understandable but slurring more and talking slowly (slightly robotically). He has had no issues so far with swallowing, choking or breathing. We are planning a family holiday to South Africa in September and then hoping to go to the Caribbean in the new year, but i'm not keen on booking anything more than 3 months in advance at this stage.
All help and advice will be greatly appreciated. Worse case and best case will give me some clues.
Thank you all.
I do appreciate that every case is different and everyone progresses at different speeds, but if anyone can give me their experience of timelines for complete loss of speech, swallowing and breathing issues I would be very grateful.
My husband started slurring his speech back in December 2016, 6 months later he is still talking and very understandable but slurring more and talking slowly (slightly robotically). He has had no issues so far with swallowing, choking or breathing. We are planning a family holiday to South Africa in September and then hoping to go to the Caribbean in the new year, but i'm not keen on booking anything more than 3 months in advance at this stage.
All help and advice will be greatly appreciated. Worse case and best case will give me some clues.
Thank you all.