Elkhorn3
Member
- Joined
- May 24, 2020
- Messages
- 23
- Reason
- CALS
- Diagnosis
- 05/2020
- Country
- US
- State
- MT
- City
- Helena
Hello,
I'm new. My husband has bulbar onset, just diagnosed, with all the classic symptoms. In just 3 months his speaking has gone from normal to almost impossible to understand, even for me. Of course some days better than others. I have studied this whole forum in the past few weeks, and am so appreciative of this warm and supportive group.
So far he can walk strongly and do things but it's changing fast. I've read that bulbar onset can progress quite quickly. I'm wondering who out there has experience with this? I know no 2 cases are alike, but we live in the mountains in Montana, and I'm feeling like I have just a few short summer months to prepare for the unknown in front of us. Any specific bulbar experience or knowledge would be helpful. Thanks.
I'm new. My husband has bulbar onset, just diagnosed, with all the classic symptoms. In just 3 months his speaking has gone from normal to almost impossible to understand, even for me. Of course some days better than others. I have studied this whole forum in the past few weeks, and am so appreciative of this warm and supportive group.
So far he can walk strongly and do things but it's changing fast. I've read that bulbar onset can progress quite quickly. I'm wondering who out there has experience with this? I know no 2 cases are alike, but we live in the mountains in Montana, and I'm feeling like I have just a few short summer months to prepare for the unknown in front of us. Any specific bulbar experience or knowledge would be helpful. Thanks.