Bulbar onset als worried!

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Tongueworry

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Long time lurker here and finally decided to post!
First of all thank you to the guys who manage this website answering each person’s doubt and queries patiently even though 99% of the users here don’t have ALS your selflessness is worth worshipping .

i am a 29 year old male from past two months i have some dexterity issues with my right hand and weird feeling in the mouth while talking. From last week onwards i have constantly this feeling of “Just the feeling that you have the tongue tip!” And i feel i’ll slur soon enough! After reading and googling i ended up thinking about bulbar onset! It would be great if someone can throw some light and tell me if i should book an appointment with a neuro muscular specialist ? I am so worried and supposed to get married in 4 months if its something serious i’d rather not !

Also, my thumb typing speed has gone slow along with inability to take a deep breath!
 

Clearwater AL

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Being you have been a long time “lurker” for a while you may have read
one one my replies about Dr. Google.

“After reading and googling I ended up thinking about bulbar onset!”

Then…

“I am so worried and supposed to get married in 4 months if its something
serious I’d rather not !”

My opinion, that’s not really getting off to a good start for someone
you love so much you are wanting to marry her.

So many times this brings two people in love even closer together.
This could have happened after you married. Then what?

I’m sure our very ALS knowledgeable members will chime in with some
helpful advice.
 

Tongueworry

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I get what you are saying but honestly i would’t want to put someone under so much stress that would be very selfish of me ! She has entire life to live i want her to be happy! No disrespect to the CALS what they are doing nothing can top that in this entire world! But i would not want someone to suffer because of me.
 

Clearwater AL

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Again, my opinion... maybe you are selling her short. If she where to say, "Yea,
lets not get married so I can go on." A true bond of love wasn't there to begin
with.

Even without this, marriages (Yours) will face stress of other topics, maybe
even more challenging. A good marriage is based on being there for each
other in any circumstance. Often very self centered individuals when a spouse
is devastated with an illness say, "I can't handle this... I'm outta here."
It's happened to PALS.

Have you talked to her about this? That might be a first step.

It's up to you, and her, if you talk to her about. If you both decide not to get
married... that may have done you both a favor in the long term.

PS. I'm a PALS, recently took a bad fall making things worse. My wife has
been diagnosed with the early onset of Alzheimers... we're closer now than
our previous 20 years of marriage.
 
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